Closed UK: DecodeME updates, was recruitment thread.

[Sasha]

One more sleep!

 

[Sean]

Gets released at 0430 Thursday my time, and it's late Tuesday afternoon here.

So two more for me.

 

[Maat]

One more sleep!

 

[hotblack]

Gets released at 0430 Thursday my time, and it's late Tuesday afternoon here.

So two more for me.

Hopefully something nice to wake up to

 

[Hoopoe]

@Andy can you say if there are any hits that are statistically significant?

 

[Trish]

I think we have to wait and not expect leaks.

 

[Jesse]

One more sleep!

Will be a long wednesday till 7pm though

 

[Andy]

@Andy can you say if there are any hits that are statistically significant?

Sorry, not at the moment, the preprint is embargoed until 7pm BST tomorrow.

 

[Tia]

Nobody seems in any way to be preparing for a result which says something along the lines of

'We found no genetic links or associations', or 'we found only a tiny association which could easily be noise/down to another confounding factor'

Essentially a negative result.

Do we somehow have certainty that this isnt going to happen?

I'm more trepidatious for a negative result than excited for something positive.

Sorry to be negative I am really struggling & low. I seem to remember Jonathan having a positive outlook on it but he didnt/couldnt say what. I'm very fuzzy memory not good

I feel the same. I strongly believe that this study is of value whatever the results because negative results tell us just as much as positive ones. I'm 100% sure that whatever the results, they can be built upon and are a step along the way. But I think it will be natural to feel a little disappointment if the results don't show any statistically significant links or associations. I'm trying preparing myself and not build it up too much. Let's remember to celebrate the excellent work that's been done regardless of whether the results are exactly what we want or not.

 

[Ariel]

Sorry, not at the moment, the preprint is embargoed until 7pm BST tomorrow.

Just wondering if there is a reason for the 7pm embargo with all the talk of time zones etc. 7pm an odd time to lift an embargo? Am more used to midnight and early morning ones. Curious as to the rationale. Anyway, hope to be on here with everyone

 

[Hoopoe]

I'm not sure if I should be preparing for a little celebration or disappointment.

 

[JemPD]

. Let's remember to celebrate the excellent work that's been done regardless of whether the results are exactly what we want or not.

Absolutely, I do get that all results are useful.
I was just reacting to people talking of excitement and wondering if I dared allow myself

Whatever the result it’s been a privilege to be part of something so well run. I feel proud to have participated

 

[Tia]

Absolutely, I do get that all results are useful.
I was just reacting to people talking of excitement and wondering if I dared allow myself

Whatever the result it’s been a privilege to be part of something so well run. I feel proud to have participated

Oh I didn't mean to imply you weren't, I was telling myself that more than anyone else!

 

[JemPD]

Oh I didn't mean to imply you weren't, I was telling myself that more than anyone else!

 

[Sasha]

I was just reacting to people talking of excitement and wondering if I dared allow myself

The time will pass quickly, and meanwhile, there's Netflix!

 

[JemPD]

The time will pass quickly, and meanwhile, there's Netflix!

lol
Sadly I too ill for tv. Time goes slowly lying alone in the silent darkness

 

[Ariel]

lol
Sadly I too ill for tv. Time goes slowly lying alone in the silent darkness

same at the moment. i have just had a deterioration and am having difficulty being here. hugs xoxo no more TV etc for me xx will think of you in solidarity laying in bed with something over face doing nothing xx

 

[Sasha]

lol
Sadly I too ill for tv. Time goes slowly lying alone in the silent darkness

Sorry, JemPD! That is indeed a very boring thing to have to do. I think it's one of the tougher aspects of this whole thing.

 

[MrMagoo]

I think either way there will be a “time before” the results and then the time after.

 

[Dakota15]

@Andy im pretty close with several reporters in the U.S. who have covered ME & LC over the years. If these connections can help with any media coverage of this (if results dictate) just let me know and I can reach out to any to gauge interest