UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

MEA update on the new end-of-June publication timeline, which apparently "follows requests from the Task and Finish Group members to allow for more time to develop the Plan".

https://meassociation.org.uk/2025/0...e-have-issued-an-update-on-the-delivery-plan/

 

No surprise.
https://www.longcovid.org/impact/ne...he-uk-despite-ongoing-need-new-research-warns

 

Sadly, all this seems to do is confirm that the plan is empty. The government strategy is a disaster so things can only really get worse. Everything will be shunted to privatised health centres. Why can we not have an open public debate?

 

I did have some hope for this plan, have tried raising it with my MP, etc. But it’s not looking positive is it.

To be honest I wouldn’t mind if they closed all the specialist clinics. They’re a waste of time in my experience and used as somewhere to shuffle people off to, part of the mechanisms for avoiding responsibility for us. Of course I don’t have experience of the LC ones so maybe they have been of use to some.

What we really need is to be under a specialism as Jonathan and others have suggested in the past.

 

Agree to all said here....
If we can 'buck the trend' in Suffolk.....depite all the attempts to subvert the process of Coproduction.... I for one will be shouting from the rooftops...... Time will tell...... sooner rather than late June!

 

I think that this post on Action for ME sums up the position of many patients who've been waiting for progress a long time and met an unacceptably indifferent response:

Michael Van Zattern: