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  1. Sly Saint
    Thread

    BBC article: Specialist mental health unit failures exposed by patients

    There are serious concerns over the standards of specialist care being provided to patients with the most complex mental health needs, a BBC...
    Thread by: Sly Saint, Jan 18, 2022 at 12:51 PM, 2 replies, in forum: Other Health News and Research
  2. Andy
    Thread

    UK: Call for action on ‘unique’ barriers facing people with energy-limiting impairments

    "A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every...
    Thread by: Andy, Dec 20, 2021, 0 replies, in forum: General disability topics and advocacy
  3. SNT Gatchaman
    Thread

    UK Parliamentary Office for Science and Technology briefing paper on Long Covid, December 2021

    UK Government Rapid Response on Long COVID Long COVID: The long-term health effects of COVID-19 (17/12/21). (Not sure the "rapid response" label...
    Thread by: SNT Gatchaman, Dec 18, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  4. Sarah
    Thread

    UK: Science and Technology Select Committee inquiry on Reproducibility and research integrity, Opened 22 July 2021

    Science and Technology Select Committee inquiry on Reproducibility and research integrity Opened 22 July 2021. Written submissions and videos for...
    Thread by: Sarah, Dec 16, 2021, 4 replies, in forum: Other Health News and Research
  5. JohnTheJack
    Thread

    Fiona Watt, Chief Executive of MRC (UK), apologizes for bullying

    MRC is now part of UKRI. On UKRI website: https://www.ukri.org/news/ukri-issues-statement-on-bullying-complaint/ News article (paywalled):...
    Thread by: JohnTheJack, Dec 16, 2021, 5 replies, in forum: Other Health News and Research
  6. Andy
    Thread

    A model framework for projecting the prevalence and impact of Long-COVID in the UK, 2021, Martin et al

    Abstract The objective of this paper is to model lost Quality Adjusted Life Years (QALYs) from symptoms arising from COVID-19 disease in the UK...
    Thread by: Andy, Dec 3, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  7. Andy
    Thread

    UK: NHS: Physical Health Psychology Cumbria team

    "The Physical Health Psychology team offer a range of services across Cumbria and North Lancashire to help you to manage your physical symptoms...
    Thread by: Andy, Nov 28, 2021, 8 replies, in forum: ME/CFS Doctors
  8. Sly Saint
    Thread

    NHS: Learn from patient safety events (LFPSE) service

    A new national NHS Learn from patient safety events service (previously called the patient safety incident management system – PSIMS – during...
    Thread by: Sly Saint, Nov 27, 2021, 0 replies, in forum: Other Health News and Research
  9. Haveyoutriedyoga
    Thread

    How do Health Service (NHS) organisations respond to patient concerns? A qualitative interview study of PALS, 2021, Shepard et al

    How do Health Service (NHS) organisations respond to patient concerns? A qualitative interview study of the Patient Advice and Liaison Service...
    Thread by: Haveyoutriedyoga, Nov 25, 2021, 4 replies, in forum: Other Health News and Research
  10. Wyva
    Thread

    Feeling like ‘a damaged battery’: exploring the lived experiences of UK university students with ME/CFS, 2021, Waite, Elliot

    ABSTRACT Introduction: Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) has been limited. This...
    Thread by: Wyva, Nov 25, 2021, 0 replies, in forum: PsychoSocial ME/CFS Research
  11. Andy
    Thread

    UK: Guardian: "NHS to give therapy for depression before medication under new guidelines"

    "Millions of people with mild depression in England should be offered therapy, exercise, mindfulness or meditation before antidepressants,...
    Thread by: Andy, Nov 23, 2021, 38 replies, in forum: Other guidelines with public consultation process
  12. MSEsperanza
    Thread

    United Kingdom: News from #MEAction Network UK

    News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK
    Thread by: MSEsperanza, Nov 22, 2021, 4 replies, in forum: News from Organisations
  13. ringding
    Thread

    Life insurance

    Ended up a bit rambling and ranty so moving my question to the top! Does anyone have any recommendations for life insurance cover with companies...
    Thread by: ringding, Nov 21, 2021, 9 replies, in forum: Work, Finances and Disability Insurance
  14. Amw66
    Thread

    UK: NHS Health and Care Bill in Parliament, Nov 2021

    England . There has not been much coverage by MSM but there are key adverts of this bill that will affect those with chronic illness . This...
    Thread by: Amw66, Nov 20, 2021, 1 replies, in forum: Other Health News and Research
  15. Lucibee
    Thread

    United Kingdom: Petition: Set up a national harms reporting scheme for non-pharmacological treatments

    OK. I'm off to jump through a few hoops. brb... (in about a week) Seems someone got in there first... :wink:...
    Thread by: Lucibee, Nov 19, 2021, 27 replies, in forum: Petitions
  16. strategist
    Thread

    UK: Secretary of State for Health and Social Care met with ME/CFS researchers Nov 2021

    [MEDIA]
    Thread by: strategist, Nov 19, 2021, 30 replies, in forum: General ME/CFS News
  17. Sly Saint
    Thread

    UK RCPCH: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) - Member briefing on new NICE guideline

    The RCPCH raised a number of issues in the consultation on the draft guideline (RCPCH’s response is on pages 742-775), including safeguarding of...
    Thread by: Sly Saint, Nov 17, 2021, 3 replies, in forum: 2020 UK NICE ME/CFS Guideline
  18. Esther12
    Thread

    United Kingdom: Science Media Centre

    The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always...
    Thread by: Esther12, Dec 10, 2017, 276 replies, in forum: News from Organisations
  19. Sly Saint
    Thread

    UK: Government to invest £375 million in neurodegenerative disease research, 2021

    Funding includes at least £50 million for motor neurone disease (MND) related research to find a cure New National Institute for Health Research...
    Thread by: Sly Saint, Nov 15, 2021, 6 replies, in forum: Other Health News and Research
  20. Suffolkres
    Thread

    United Kingdom: Social Prescribing - a potential part of ME/CFS services

    There is a potentially very serious issue about the likely direction of travel for ME Service - its likely reliance on UK initiative, Social...
    Thread by: Suffolkres, Nov 9, 2021, 2 replies, in forum: General ME/CFS News
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