UK Invest in ME conference 2025

A thread on this.

 

https://youngemerg.com/yemerg05reg.shtml

 

What does the tweet say please?

 

I haven't followed these conferences for years - I remember being really excited about them in the rituximab days and ordering the DVD every year.

Are they still being worthwhile?

 

I can see it when I click the image (I don't have a Xitter account).

 

They are calling it 'International Conference Week' now as there are several events/conferences running consecutively, as is usual for IIMER. More details here: https://www.investinme.org/meconferenceweek2025.shtml

 

Seems like a lot of the speakers are tbd.

 

tbd ? to be determined?

 

Didn't IiME go through a phase of not wanting anyone to attend who had been in Stephen Holgate's UK CFS/ME Research Collaborative because it included BPS people? I seem to recall that they excluded the Edinburgh group for this reason, and it would be madness if they're still doing that. Have I got this wrong?

I'd just like to know whether this conference still has any value, because if it doesn't, maybe we need a UK one that does.

 

I think any conference would have more value if different orgs collaborated, but unfortunately they all seem to want to do their own thing.

 

@Jonathan Edwards - Do you still go to these conferences? Do they include the people we'd want to see there, such as the Edinburgh group?

 

Chris Ponting is there


https://www.investinme.org/brmec14agenda25.shtml

 

Thanks, that's very good to see, and Chris Armstrong.

Pity Dr Fluge isn't on the list or we could all have gone and asked him to give us a big placebo effect.

 

Merged thread

Invest in ME Research - European and International ME Research - Conference Week

 

Moved post

From X:

Young European ME Research Group: 'We're excited to announce the lineup of speakers for the #SPARKME workshop. http://youngemerg.com/yemerg05.shtml Alongside leading experts in #MECFS, we’ll feature early career researchers to present their research

We’re honored to welcome Vicky Whittemore, who will give a keynote speech on the #NIH RECOVER initiative"

https://twitter.com/user/status/1917136850700939567

 

No, they threw me out, more or less.

 

Too many questions and objections they did not like?

 

I withdrew from plans to do a rituximab trial because Fluge and Bella had money for phase III and th case for another trial was weak.