UK Invest in ME conference 2025

Didn't IiME go through a phase of not wanting anyone to attend who had been in Stephen Holgate's UK CFS/ME Research Collaborative because it included BPS people? I seem to recall that they excluded the Edinburgh group for this reason, and it would be madness if they're still doing that. Have I got this wrong?

I'd just like to know whether this conference still has any value, because if it doesn't, maybe we need a UK one that does.
 
Sasha said:
Didn't IiME go through a phase of not wanting anyone to attend who had been in Stephen Holgate's UK CFS/ME Research Collaborative because it included BPS people? I seem to recall that they excluded the Edinburgh group for this reason, and it would be madness if they're still doing that. Have I got this wrong?

I'd just like to know whether this conference still has any value, because if it doesn't, maybe we need a UK one that does.
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I think any conference would have more value if different orgs collaborated, but unfortunately they all seem to want to do their own thing.
 
Merged thread

Five years ago, we described the initiatives and achievements of the charity in fostering European collaboration among researchers, clinicians, and patients [1].
The pandemic paused the bi-annual clinicians' meetings that had been continuing in London; and it was 2023 before we implemented the fourth pillar of our strategy: an early career researcher network ( two annual international ECR workshops having already been performed).

This year's International ME Conference Week will unite these elements, featuring European and international researchers, clinicians, and early career researchers, and including our European ME patient group/charity colleagues.

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This article revisits briefly the charity's initiatives to establish European networks to advance research and treatment of ME and build capacity, in collaboration with European patient organisations.
Our International ME Conference Week proves we have the networks already.
Also news of conference Week 2026
Though the DHSC plan for ME (2022-2024) achieved nothing of significance [4] it did allow us to propose to the researchers involved in the research working group to join together to form a common effort to fund centres of excellence - and also join EMERG and develop European research plans together. We were glad that some of the researchers accepted.
We hope others will follow and develop further these networks, and the conference week events will facilitate this.
Thanks to our supporters, these European initiatives will have a presence during the conference week in May - with EMERG/EMECC researchers and clinicians from eleven European countries involved in the colloquium; Young EMERG members in the early-career researcher workshop, and European ME Alliance partners at our conference.

Registration for this year's #IIMEC17 conference is now open.
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European Infrastructure Development
To treat and cure ME, infrastructure and funding are crucial. Pan-European projects maximise research capacity, especially necessary due to the limited resources.
Over the past decade, Invest in ME Research and supporters have built a foundation for sustainable research, recognising the need for self-initiated efforts due to lack of official support.
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These initiatives were developed to expedite progress in research and treatment of ME producing a powerful combination of campaigning and raising of awareness, building new research and accumulation of data based on collaboration, and sharing of experiences and knowledge, building up a strategy of high-quality research into ME.
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Invest in ME Research - European and International ME Research - Conference Week
 
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