Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

[Piper]

There were probably others reading the thread but not feeling the need to ask questions, and plenty more can read it afterwards. Too many trying to join in might have been a bit chaotic (though it would have stopped me asking so many questions!)

I was unaware of the event and therefore ill prepared to ask informed questions. Again, not a criticism.

Probably will get back in my box and stay there for the next one!

 

[Inara]

Thank you all who organised and participated! I think it was a great event. I have no suggestions for change, I just liked it.

 

[Joel]

I missed it due to other commitments but having just read through the whole thread it looks like it went very good and I found it very interesting. I think anyone who reads this thread over the coming weeks and months will find it interesting.

Off the back of this thread I'm actually going to make a donation to the biobank for their Christmas appeal because I'm very impressed with everything I've seen and their interaction with patients. I almost can't believe this is in the UK but I'm very pleased it is because I think it is definitely going to stimulate better research here, stuff that might genuinely lead to answers.

Thank you to @The UK ME/CFS Biobank for taking part and organizing it at your end, and for your hard work with the research and education in general. I think the education work you do with researchers/student is going to be very important just like the actual research.
And thanks to @Andy who did all the organizing at S4ME's end.
Fantastic job all round.

 

[It's M.E. Linda]

If people feel so inclined, the biobank would also be very grateful for one off or regular contributions

http://cureme.lshtm.ac.uk/donate-to-cureme/

(Hope that's ok to post?)

 

[Esther12]

Any thoughts on how we could have improved it?

Get Wessely in!

edit: my stomach turned on seeing my own post. I think we'd need something more structured for a slippery one.

 

[Milo]

Very thankful for @The UK ME/CFS Biobank to engage with the patients and this forums, I have made a donation, and encourage others to make one.

 

[Andy]

Slide show of the Q&A now created

 

[Inara]

Wow, great @Andy, thank you!!

 

[Andy]

And with lots of help from @Inara , we now have a German version as well.

 

[Joh]

The German Association of ME/CFS shared the German translation on Facebook and Twitter and followed s4ME.