Open UK Survey into the experience of adults with ME/CFS of using nutrition to manage symptoms

Gecko

Gecko

Senior Member (Voting Rights)
A family friend is doing her Masters dissertation on nutrition in ME, and so has put together a short survey that she would be grateful if people could fill in.

She has (independently of me) started to look into and been shocked by the research into ME and the stigma our community faces, hence deciding to focus her dissertation on ME. She has also become a trustee of Sheffield ME & Fibromyalgia Group based on her past management experience and is very keen to support the group to grow.

So I would also be very grateful if people could help her complete her Masters.
https://www.surveyhero.com/s/cf0c260

Research Survey on ME/CFS and Nutrition
My name is Isabel and I would like to invite you to take part in a research project about how people with ME/CFS use nutrition in help manage symptoms.
This is supervised research undertaken as part of an Masters degree in Nutrtitional Therapy at the University of Worcester. A summary of the results of this work will be made available upon completion in 2021. All the data will be collected in line with University data protection policies, with all data anonymised.
This study aims to explore the experience of adults with a diagnosis of ME/CFS in the UK of using nutrition to manage symptoms associated with their condition. If you agree to take part you will be asked to complete an anonymous online survey to find out about your nutrition, and how you use nutrition to manage your symptoms.
The survey should take 10-15 minutes to complete.
Please contact me, Isabel Hemmings, with any queries via: HEMI1_18@UNI.WORC.AC.UK
I would be very grateful if you could complete this survey via the link. Many thanks.
Click to expand...
 
Last edited by a moderator:
There goes my master thesis :rofl: Or, at the moment I'm more interested in seeing if I can interview pwME on food habits when in PEM.. so much to think about :)

I'll fill it in later.

This link works for me @Mij: https://app.surveyhero.com/s/cf0c260 The original has some %20 in front of it and then sends you to facebook for some reason.

Edit: I won't fill it in later as she's asking for UK based pwME ;)
 
I've done it too. Not sure how complete, as I was flagging towards the end and may have missed some things out from the general statement bits.
 
oh well, I tried.

I am unable to progress due to the concepts in the describe your symptoms page being 'wrong' - i am not allowed to leave blank options using 'unacceptable' language to describe exhaustion (amongst other things) being labeled as feeling 'tired'.

So I cannot complete this survey.
 
I decided to fill it in anyway, even though I didn't like the wording of some questions, and some made little sense. I thought it was mostly OK. I wonder whether she tested it on any pwME first for feedback on whether the questions made sense.

It's hard, for example, to answer a question about what proportion of the time I suffer sensitivity to smells, or how often I feel unsteady standing. One logical answer is 'all the time', since whenever exposed to some products I am smell sensitive, and whenever I stand I feel unsteady. The alternative answer is 'very little of the time' since I avoid those triggers.
 
You must log in or register to reply here.
Back
Top Bottom