I took ill at 14 and experienced classic ME symptoms. I had fatiguability, doing fine then flat on the floor, no temperature regulation, neurological symptoms, double vision, dropping things, headaches and a general feeling of being ill.
But, I was not old enough to know what adults felt and assumed everyone felt as ill as I did and I was just a wimp. I lived a normal life and hid much of the strange symptoms, like light and noise sensitivity and transient paralysis. I would dive into the bathroom when I felt a seizure like episode coming on, let everyone assume I was too vain to wear glasses because I could not see because of vision problems.
During this, I experienced great pain in my legs, back and especially wrists when I was writing in class but being from a family where lying down to illness was the greatest crime I just put up with it, not through any sort of bravery but because I thought that was the way the world was. I managed to evade PE for almost a year as the teacher mixed me up with another girl (Yay!) But I worked on Saturdays, went to school, went out and walked everywhere, including 25 minutes each way to school (I hated buses and couldn't afford the fare after school rates went off.)
I was never deconditioned and had no anorexia, rather the opposite as eating gave me a boost that helped me carry on. Until this is understood then no one is going to make sense of ME.
Since CFS put everything on fatigue all the other symptoms which affect us have been ignored, yet Ramsay understood that ME affects people differently and the common thing is that their bodies don't work not feeling tired.
Edited to say, the important thing is that it is not possible to keep up that level of overactivity. I did it because I knew no better, now kids will be doing it because it is a "treatment".
By the time I was 17 I was collapsing as soon as I got in the front door as will power was no longer enough. My life was destroyed though I have been luckier than many it was no thanks to the medical profession
