United Kingdom: Salford CFS Service, Northern Care Alliance

Hutan

Hutan

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daftasabrush said:
2. Chronic Fatigue Syndrome (CFS)/ Myalgic Encephalopathy (ME) Management Programme
Salford Royal NHS Foundation Trust 2021. Web version. Review date: June 2023.
The aim of cognitive-behaviour and graded activity therapy is not simply to be more active, but to make activity and rest consistent, rather than symptom dependent. By doing this you will be able to gradually increase your ability to carry out everyday activities while slowly cutting down on excessive rest.(basically exactly like GET)
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https://www.northerncarealliance.nhs.uk/our-services/me-cfs-management-programme/introduction
Currently the preferred term is CFS / ME and this will be used throughout this site.
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CFS /ME is a complex illness. Current research has shown tha there can be a range of factors that cause an individual to develop it and theories suggest that it may be a combination of physical and psychological factors. Genetics may also play a part as you are more likely to develop it if there is a family history.

Some predisposing factors include stress, lifestyle and personality may make it more likely someone will develop CFS / ME. While we cannot change the predisposing and triggering factors we can work towards reducing the factors that uphold the symptoms or make them worse.
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Awful, and an illustration of how the word 'complex' is used to mean a combination of physical and psychological factors.

Due to persistent fatigue, when sufferers do have some energy it can be easy to slip into the habit of trying to do too much. We call this the boom and bust cycle. On the days you have energy you have a boom of activity, but this is followed by a bust as energy is required for recovery.

This can become a vicious cycle that can maintain your ME / CFS.

You can find more about this cycle in the Boom and Bust cycle section.
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Planning ahead is really helpful. Generally, you will plan the coming week's targets with the ME / CFS team in the diary review session.
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Avoid daytime sleeping
This is more likely to increase sleep problems at night. Establishing consistent bedtime and morning routines can also help (More on sleep in a later session).
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  • Feeling more tired than usual
    At first you may find yourself feeling more fatigued. This is normal and temporary! It does not mean that the treatment is not working, or that the illness is getting worse, or that you are damaging yourself. Your body just needs time to get used to this new pattern of planned, consistent rest and activity. With time your body will get used to the new pattern and the symptoms will stop by themselves.
  • Feeling worse before you start an activity
    You may also feel worse just before starting an activity: again this is normal, and often linked to apprehension. Once you actually start you will probably feel better.
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I could go on, it's all thoroughly dreadful. Someone needs to tell them that the 2021 NICE Guideline happened.
 
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June 2022
Sly Saint said:
another job ad for a supposed 'new' long covid service.

Practitioner Psychologist (Long Covid Programme)Salford
An opportunity has arisen for a suitably qualified and experienced clinical or counselling psychologist within the Clinical Health Psychology Department at Salford Royal covering the new Long COVID service and Chronic Fatigue Syndrome. Newly qualified applicants or those in the process of qualifying will be considered. The post is a permanent post.

A commitment to provision of evidence-based health care is essential. An understanding of the psychological factors influencing physical health and delivery of health care would be desirable, as are excellent interpersonal and communication skills. Enthusiasm and commitment are essential.


https://www.totaljobs.com/job/practitioner/salford-royal-nhs-foundation-trust-job97944776
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a reply to the quote in the first post in this thread (can’t cut and paste it atm)


Suggested assertively based on no proof knowledge or care about whether that’s true or does anything whatsoever for health function or even happiness - I find it astounding as that makes it just a manifesto of some randos ideas of ‘shoulds’ justified (in their head) by making up their own beliefs that it works rather than harms to ‘stop being symptom dependent’ aka it’s still pushing ‘over sensitive to bodily sensations’ crud that causes untold damage including psychologically

ie against the main line in the 2021 guidelines underlining it’s ‘spirit’ in anticipation of wheedlers who might likely just use tricks and slight of hand in response to a serious issue by just change name or flavour of things that were based of disproven delusions of deconditioning or ‘patients being the ones with false beliefs’ - I don’t think that needed to actually say ‘and so anything behavioural based on thinking fake it til you make it’ or worse for it to be plain as day but…

I don’t understand how the professions professional associations permit those under them to push such harm therefore and to use a pretence it’s ’mental Health’ rather than behavioural training for reasons that aren’t heakthy and without informed consent given the embedding (without even telling people you are doing it nevermind asking), then telling fibs about the effects of following these suggestions so major ethical breaches surely and gaslighting ‘in the name of’ a profession or treatment whose names been nicked fur something that isn’t mental ‘heakth’ but just bs screwing up people. How are letting this behaviour happen?
 
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