Updates from the UK ME/CFS Biobank / CureME team

Our very own vampire!

Nurse Caroline Kingdon

 

I participated in the original study but unfortunately cannot continue to do so as I now take fludrocortisone for my blood pressure. Caroline also took samples from my husband as a healthy control. So even though we are in the depths of Suffolk we were two for the price of one

I am however sending in monthly samples of urine and saliva for the second study. This study also includes extra sample packs for participants to send in samples when they are in a flare.

The biobank team are great, very professional and supportive of the participants.

 

"
Research Assistant or Research Fellow in Epidemiology/Clinical Research
London School of Hygiene & Tropical Medicine - Disability and Eye Health Group
Location: London
Salary: £33,567 to £43,759 per annum, inclusive
Hours: Full Time
Contract Type: Fixed-Term/Contract
Placed on: 7th March 2018
Closes: 27th March 2018
Job Ref: ITD-CRD-2018-05
Applications are invited for a Research Fellow or Research Assistant to join the CureME Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) research team in the Disability and Eye Health Group at the London School of Hygiene & Tropical Medicine (LSHTM).

The role presents an exciting opportunity to join a dynamic team working on ME/CFS biomedical research, which includes the UK ME/CFS Biobank, the first of its kind in the UK. The UK ME/CFS Biobank is managed at LSHTM and the samples are processed and stored at the University College London/Royal Free Hospital Biobank. For more information on the work of CureME, please visit http://cureme.lshtm.ac.uk/."

 

Note that more details on the job can be found here:

https://jobs.lshtm.ac.uk/vacancy.aspx?ref=ITD-CRD-2018-05

 

Not knowing how many might be expected to apply I asked the question and got this reply from Jack.

So looks very positive.

 

I always feel nervous about things like this, in case it's some SMC-style propaganda piece.

 

You can never control journalists themselves but I don't think this has anything to do with SMC. The input is from Biobank people and others very aware of the SMC problem. (I know little about it myself but know who is involved.)

 

Dr Shepherd is being interviewed for the documentary tomorrow. I've seen nothing that is of concern. The producers came through us to recruit case studies - young people with M.E. - last month.

 

There was a short piece earlier in the week about the BBC filming at Merryn's family home (sorry but I have forgotten her surname) for a programme on severe ME to be screened in May in ME awareness week.

Are there two programmes on ME to be going out soon?
@Russell Fleming

 

This is the one mentioned in Merryn Croft's thread: https://www.s4me.info/threads/manch...ie-from-me-was-torture.3291/page-3#post-63231

 

Per RTs by the MEA, it looks like the documentary that filmed at the Biobank will be called 'M.E. and Me' and is produced by Radio 1 Newsbeat. They often feature Newsbeat items on the front page of BBC News Online, so fingers crossed...