Updates from the UK ME/CFS Biobank / CureME team

-- We're recruiting a Research Nurse! --

Are you a registered nurse with a patient and respectful bedside manner, and a desire to work in a cutting-edge research project at a world-leading institution?

The successful candidate will have a unique opportunity to be at the very heart of our research work, developing relationships with the participants with whom you will be conducting visits. Applicants must be willing to travel, ME/CFS experience desirable but not mandatory.

Competitive salary in line with NHS Band 6/7 and generous pension and annual leave.

Full details: https://jobs.lshtm.ac.uk/vacancy.aspx?ref=ITD-CRD-2018-17
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I just came back from the group meeting of the EUROMENE , today was the first day.

I had an interesting talk with Carmen Scheibenbogen and she discussed about impaired functioning of macrophages which I found very interesting since the algorithmic approach I am using has previously identified this potential issue.

Tomorrow is the presentation of my hypothesis to the Core Group, I have one hour available so I am really looking forward to the comments of the Researchers.

I had also the opportunity to talk through email to Dr Charles Shepherd and he also expressed interest on the “Liver hypothesis “ I hope that someone will be convinced to look more closely at Liver function

I will post tomorrow an update and some photos
 
From the Irish ME/CFS Association:
We are delighted to support the CureME biobank in the UK: https://cureme.lshtm.ac.uk/

We’d asked our members what to do with €25000 of our research fund (incl. keep). The results are out this week.

Thanks to all our donors & fundraisers plus others who have supported us in any way
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[The Association decided to donate €5000 to CureME.]
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https://www.facebook.com/TomKindlonMECFS/posts/1165719883576135

 
The CureME team at the London School of Hygiene & Tropical Medicine (LSHTM) is thrilled to have received an Honourable Mention for Biobank of the Year 2018, presented on Tuesday 27th November at the UK Biobanking Showcase in London.

The Showcase is run each year by the UKCRC Tissue Directory and Coordination Centre, and comprised of a day of seminars and workshops to facilitate networking and infrastructure strengthening of UK bioresources. The day concluded with the award ceremony for Biobank of the Year.

The UK ME/CFS Biobank (UKMEB) entered two case studies to demonstrate how the resource had been established with comprehensive patient engagement and involvement, and how it has led to high-quality research both nationally and internationally thanks to collaboration with external researchers. Since its opening, the Biobank has enabled virology, immunology, metabolomics and transcriptomics at the LSHTM, UCL and the University of Oxford, as well as at collaborator sites in Europe, America and the Middle East.

The UKMEB was one of only two award-winners from among a strong field, with the committee praising its “significant research value and excellent patient engagement with the community.”

We would like to thank the UKCRC and scientist.com, sponsor of the awards, as well as the US National Institutes of Health (NIH) and the ME Association for their continuing support of the UKMEB. Funding for the Biobank’s establishment was provided by the ME Association, as well as Action for M.E., ME Research UK, and an anonymous donor. However, our greatest debt of gratitude is owed to all of the people with ME who have given their time and energy to contribute to the Biobank and have supported us so much over the last seven years – thank you.
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https://www.facebook.com/mecfsbiobank/posts/2068723066508459

 
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