Dolphin
Senior Member (Voting Rights)
ME Research UK:
The United State's National Academies has commissioned and now published a Consensus Report addressed to both public and private funders of biomedical research.
Recommendation Two is most apposite to ME/CFS
"Funders of biomedical research should consider disease burden and unmet need when setting research priorities and directing funding. Specific actions to ensure both population health needs and scientific merit are considered in grant funding mechanisms include:
Developing targeted research funding opportunities specific to diseases with the highest mismatch of burden and unmet need, including funding opportunities for innovative methods to enable the development of therapeutic products and new biomarkers for diagnostic test development in these areas.
Allocating funds for development and validation of new biomarkers and surrogate endpoints for diseases with high unmet medical need.
Providing funding for studies of disease epidemiology or basic science for areas where there is a critical need for understanding the mechanisms of disease.
Including explicit criteria that include, but are not limited to, unmet need and disease burden for evaluating proposals in the grant review process and funding decisions."
ME Research UK summarises - https://tinyurl.com/mry3byf6
The United State's National Academies has commissioned and now published a Consensus Report addressed to both public and private funders of biomedical research.
Recommendation Two is most apposite to ME/CFS
"Funders of biomedical research should consider disease burden and unmet need when setting research priorities and directing funding. Specific actions to ensure both population health needs and scientific merit are considered in grant funding mechanisms include:
Developing targeted research funding opportunities specific to diseases with the highest mismatch of burden and unmet need, including funding opportunities for innovative methods to enable the development of therapeutic products and new biomarkers for diagnostic test development in these areas.
Allocating funds for development and validation of new biomarkers and surrogate endpoints for diseases with high unmet medical need.
Providing funding for studies of disease epidemiology or basic science for areas where there is a critical need for understanding the mechanisms of disease.
Including explicit criteria that include, but are not limited to, unmet need and disease burden for evaluating proposals in the grant review process and funding decisions."
ME Research UK summarises - https://tinyurl.com/mry3byf6