USA: Disability Insurance for ME/CFS

Emily Taylor

Senior Member (Voting Rights)
July 2019 Solve ME Webinar: Disability Insurance for ME/CFS

Disability Insurance Attorney Andrew Kantor from Kantor & Kantor, LLP joins us to explain the ins and outs of filing for disability under an ERISA (employer-sponsored) Policy when disabled from ME/CFS.

Register for the webinar here: https://register.gotowebinar.com/regist…/7859837279936060428

We'll discuss common pitfalls patients face when applying, how to best protect yourself from a denial of benefits from a biased insurance company, and what to if you have received that denial.

 
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another youtube video (seems well informed)
Social Security Disability Benefits For Myalgic Encephalomyelitis | Chronic Fatigue Syndrome
Published on 18 Jul 2019
https://caveylaw.com/tampa-social-sec... | Do I Qualify for Social Security Disability Benefits if I Have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome? Social Security Disability attorney Nancy Cavey talks about the qualifying conditions in which you may be eligible for Social Security disability benefits if you are affected by ME/CFS and live in the state of Florida. Nancy Cavey in St. Petersburg | Florida based Social Security Disability attorney who can help you file a claim for benefits no matter where you live in the state of Florida. Give us a call at 727-894-3188 with any questions you may have when applying for disability or if you have been denied your SSD benefits. Free consultations!
 
I must agree with Samuel on the general point that, too often, such events are promoted with insufficient attention to needs of the anticipated audience. Most ME charities are relying on the internet and its easiest methods rather than thinking clearly about what patients can manage. I'm online, obviously, but my participation in various events put on by SMCI, MEAction, Bateman-Horne Institute, NIH seminars? Close to zero, for all the reasons @Samuel mentions.

I'm chair-bound, and seldom have the mental bandwidth to participate in any scheduled event or to read much (so "bye-bye" MEAction emails, long posts on s4ME, long videos, Facebook support groups, and the myriad other "communication" methods that are beyond me and make me feel overwhelmed). I can and do occasionally print out and read short sections of material (thank you OMF!), so I can easily keep track of where I am, but that's pretty much it for me. But if there isn't a transcript I can read at my own pace, an online seminar or research report does me no good.

I don't mean to be snarky, but there really isn't sufficient attention paid to those who are more severely ill. If "communication" is done in a way that the intended audience can't make use of, then it really isn't communication, is it?
 
I wasn't able to attend this webinar today; anyone happen to watch / have a recap of some valuable points?
 
New Republic Article by Zaitchik Discusses COVID Long-Haulers ... and Their Disability Remedy
Many in the workers’ compensation insurance industry have been trying to predict what costs COVID-19 will ultimately impose. One line of thought is that most claims will be of short duration, with those found compensable perhaps only lasting weeks, and with de minimis medical expense. Other claims analyzed in such projections, of course, are more costly occurrences. Those are the ones featuring death.

Insurance industry commentators, however, are now recognizing another potentially expensive type of claim, that is, those COVID cases that become chronic. The term for the condition is “Long COVID.” The victims, meanwhile, have been called “long haulers.”
All of this is of interest to the workers’ compensation professional because it is chronic cases that can be the most challenging for the system. And, notably, the author here compares Long COVID to a long-recognized condition we encounter in workers’ compensation, “chronic fatigue syndrome” (CFS). Here the author refers to CFS in its full modern articulation, or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, or ME/CFS. ME/CFS is like another sometimes-chronic condition, Lyme Disease, encountered in workers’ compensation.
https://lawprofessors.typepad.com/w...ong-haulers-and-their-disability-remedy-.html
 
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