Well-known, famous people with ME/CFS (public thread)

Most of us have probably minimised and tried to sound positive and offered false hope of our imminent recovery when explaining our illness to customers and bosses. The relationship that minor slebs have with their fans is similar.

 

Corey Feldman splits from wife Courtney Anne after her battle with chronic fatigue took a toll marriage
https://www.dailymail.co.uk/tvshowb...e-chronic-fatigue-took-toll-relationship.html

eta:

https://www.independent.co.uk/life-...ne-mitchell-announce-separation-b2389433.html

 

loads of articles about Martine McCutcheon and cfs around today. Too many to post links. very easy to find if anyone's interested.

 

https://www.dailymail.co.uk/tvshowb...-McCutcheon-hospitalised-chronic-illness.html

She penned: 'Mallorca life. Love it. Had a big flare up of my CFS lately and the travel was tough but waking up in the sunshine, feeling the hot heat soothe your aches and pains along with a warm gentle warm breeze is just heaven!'

Later that day she told her followers that all the travelling and walking had made her legs feel like she was lifting a ton of weights.

She added that she was 'shuffling along slowly' taking her time time and that swimming in the pool was relieving for her joints and muscles.

 

I read Martine McCutcheon’s Instagram post and was fairly happy with it. Seems to get across she has a debilitating chronic illness and calls for people around patients to read up about it. I thought it was a lot better than a lot of celebrity coverage.

 

Martine McCutcheon's article in the Daily Express is remarkable and significantly different to her articles in the other papers. At the end of the Express article it says:
"This article was crafted with the help of AI tools, which speed up http://Express.co.uk ’s editorial research. A news editor reviewed this content before it was published. You can report any errors to readercomplaints@reachplc.com."

Firstly, it lists PEM as a symptom which I don't think gets a mention in the other, nearly identical, articles in Hello! OK! Daily Mirror, Liverpool Echo and many others. It goes on to describe GET: "In the past, graded exercise therapy (GET) was commonly used to manage CFS by gradually introducing physical activity into a patient's routine. However, this approach was discontinued as it was found to worsen the illness and even result in fatalities. The NHS now advises against GET for individuals with ME/CFS."

I don't remember seeing mention of "GET resulting in fatalities" before in any popular 'celebrity' press articles like this before. Most of which will have emanated, I guess, from the Science Media Centre.

https://www.express.co.uk/life-styl...tigue-syndrome-symptoms-ME-Martine-McCutcheon

 

not sure how well known this chap is.

Steve, Founder of Hardtail Party, Has Some Bad News

Steve, Founder of Hardtail Party, Has Some Bad News | The Radavist | A group of individuals who share a love of cycling and the outdoors.

 

and it lists it under
"The NHS website outlines the various symptoms associated with ME";

The main NHS site does not list PEM so it's good that AI gleaned its info from other nhs sites eg nhsinform(Scotland) or some of the other regional NHS sites.

 

Curious about some of the other continuing Martine McCutcheon articles that say she went to hospital because she felt dizzy and could hardly stand (quite a common occurence for most of us I imagine), and that after she got her CFS back under control she feels like she's 30 again.

https://virginradio.co.uk/entertain...cutcheon-controlling-chronic-illness-symptoms

wonder what treatment she got in hospital?

 

"Martine McCutcheon was diagnosed with chronic fatigue syndrome (CFS) over two decades ago"
https://www.irishnews.com/lifestyle...invisible_illness_gives_perspective_-3552552/

hmm: actually in 2011.
(according to all the other articles)

 

Martine McCutcheon: Living with an invisible illness gives ‘perspective’
https://www.offalyexpress.ie/news/l...h-an-invisible-illness-gives-perspective.html

 

Former international runner taking on first half marathon since ME diagnosis

https://www.southwalesargus.co.uk/sport/23746035.megan-bowen-taking-cardiff-half-marathon-nspcc/
doesn't say when she was diagnosed

 

Running utterly destabilised my mild ME and I never recovered. Seeing stuff like this is so worrying.

 

https://twitter.com/user/status/1725930720684646545

 

"I couldn't take the dream job that was waiting for me."

Those famous secondary gains.

 

That's just how much the 'sick role' is worth it. It's an insane belief, but under that belief it all makes perfect sense.

 

https://www.youtube.com/watch?v=JO8o6o_JZ2o

 

"Casey Stoner details how he copes today with ongoing chronic fatigue [=#CFS] issue"
https://www.crash.net/motogp/news/1...-he-copes-today-ongoing-chronic-fatigue-issue