Well-known, famous people with ME/CFS (public thread)

ryanc97 said:
AI bigshot, Deepmind. I talked to him on X about ME/CFS. He gave me his email. I will pitch him Fluge Mella (my fav obviously).
Click to expand...
Sorry, I don't understand. Also, do you maybe know how long was Ian ill?

Daniel has "Creator of Applied Determinism" in his profile info and a link to the website which says:
Applied Determinism is a cognitive practice that teaches practitioners to utilize an understanding of determinism to dismiss the emotions they experience in relation to behavioral agents previously considered to possess free will. Everything you need to get started is here. “The Behavioral Judgment Model of Agential Emotion” introduces and describes those emotions that you will be able to dismiss while the overview deck lays out the practice of Applied Determinism and the logic behind it.
Click to expand...
I'm not convinced.

A friend (or perhaps an ex friend) who works for DeepMind suggested I try brain retraining because it helped their colleague. I'm not claiming it was this guy, just saying that you can't judge someone's common sense by their CV.
 
Felis Catus said:
Applied Determinism is a cognitive practice that teaches practitioners to utilize an understanding of determinism to dismiss the emotions they experience in relation to behavioral agents previously considered to possess free will …
Click to expand...
This sounds like an unholy mix of cognitive behavioural therapy and current AI hype keywords. I am/was Silicon Valley adjacent and all anyone talks about now is agent this agential that…

My full support for trying to get donations to Dara though.
 
ryanc97 said:
Well he replied, sadly he believes in brain retraining. So there's that. He did mention this guy called Pieter Abbeel, also in AI. I asked if I could get his contcact.
Click to expand...
Thanks for trying, a shame. Survivorship bias can be strong even in the intellectually smart. I often wonder if it’s more prevalent in the successful as they attribute the success directly to their own efforts and discount luck. Good or bad.
 
hotblack said:
Survivorship bias can be strong even in the intellectually smart. I often wonder if it’s more prevalent in the successful as they attribute the success directly to their own efforts and discount luck
Click to expand...
Agreed. The tech community in Silicon Valley which is almost entirely male has fallen prey to all sorts of crazy ideas in recent years (look up TESCREAL). They are very pro individualism, and self determination, yet they also behave in a cultlike way. They are a closed off culture that idolizes other male techies and AI, and actively exclude women. I’m sure they as a group believe they can engineer their way out of any physical calamity.
 
Last edited:
"Steve Kerr shuts down Kristaps Porzingis rumors about severe chronic illness

The Golden State Warriors head coach addressed reports connecting the veteran big man to postural tachycardia syndrome, or POTS. Kerr stated that the widely circulated diagnosis was incorrect.

Kerr also noted that whatever kept Porzingis sidelined earlier in the season was unrelated to his recent illness. He described the most recent absence as a routine sickness rather than an ongoing medical condition." (except that KP has a routine sickness every other week)

 
OrganicChilli said:
"Steve Kerr shuts down Kristaps Porzingis rumors about severe chronic illness

The Golden State Warriors head coach addressed reports connecting the veteran big man to postural tachycardia syndrome, or POTS. Kerr stated that the widely circulated diagnosis was incorrect.

Kerr also noted that whatever kept Porzingis sidelined earlier in the season was unrelated to his recent illness. He described the most recent absence as a routine sickness rather than an ongoing medical condition." (except that KP has a routine sickness every other week)

Click to expand...
Not sure it has been said here but the Golden State Warriors recently bought/traded for him for a lot of money.
 
Jaybee00 said:
“Kerr indicated that the Warriors received internal confirmation before completing the trade that Porzingis was not dealing with POTS.”

So why did they sign him?
Click to expand...

www.espn.com

Kerr walks back comments on Kristaps Porzingis' diagnosis

Warriors center Kristaps Porzingis will miss a fourth straight game on Saturday night due to general illness.
www.espn.com www.espn.com

The Warriors acquired Porzingis at the February trade deadline from Atlanta for Jonathan Kuminga.

"I read about the POTS diagnosis and called the Hawks [general manager] Onsi Saleh," Kerr said. "He's a good friend of mine and I said 'Is this POTS story real?' He said it's actually not POTS. That was some misinformation that was out there."

Kerr walked that hypothesis and assessment back on Saturday when asked to clarify.

"It was a stupid mistake by me to talk about something I'm not qualified to talk about," Kerr said. "Even trying to discuss the diagnosis, that was a mistake. I need to leave that to professionals."

Porzingis first started struggling with an elongated illness in his final season with the Boston Celtics, later revealing that Boston's doctors had identified POTS as the cause. He was limited to 17 games this season in Atlanta in part due to illness.
Click to expand...
 
rvallee said:
A few physicians certifying that "there is nothing wrong with him" would certainly do the trick.
Click to expand...

In such case there are grounds to sue for a refund, but then it gets political due to governments also denying illness and disablity. Maybe a settlement. It must be hard to lose a sports career this way.

Maybe such people can still salvage something of their health and ability.
 
You must log in or register to reply here.
Back
Top Bottom