What do we know about oral rehydration or electrolytes for OI in adult PwME?

How can they be clued?

 

There aren't that many doctors who understand physiological control mechanisms well enough to apply their knowledge reliably. I suspect that will always be the case. AI systems may in ten years time be good enough to understand reliably - which will present an interesting situation. But they need to be programmed with logical methods, not with the popular text that is the basis of 'large language' systems

In the meantime the solution is probably groups like S4ME, teaching each other the real physiology and pointing it out to the doctors. The level of critical debate here is far higher than you get in a medical community.

 

Agree it’s an issue because I’m unaware of there being a test for blood volume or certainly one done as standard?

If blood tests taken when approx 1.5l have been drunk in the 30mins preceding show results which could be due to low plasma in a pwme who does drink a lot of fluid (and always have even prior to ME). And then that person tries a blood test where they drink eg a can of soft drink straight before and then numerous glasses of water during the blood test. And when the results come from that test the situation is significantly improved (vs the others).

Would that indicate the example above of it being weed out too fast/moved to bladder if not. And what might be the causes?

I get the idea of it potentially being a balance switch set wrong but if that person is thirsty a lot and has something where the lying flat thing holds and standing up for long is a problem etc it feels like other indicators are there.