What treatment trials for ME/CFS are currently ongoing?

We need more than B vitamins and LDN!!!!

 

Isn't that one finished, and wasn't the success negative? Or is there a second trial?

 

Chronic - all of the above - Syndrome.

You nailed it.

 

The trial on fecal transplantation will start up in March next year, and they are still open for inclusion. The trial is called The Comeback Study and it has its own Facebookpage. Currently everything is in Norwegian, but I am sure they can write updates in English as well if requested.

 

That's a great resource, @Cheshire! Far more going on than I thought.

Would it be helpful to indicate in the study titles which are treatment trials?

 

Here's an official link to the Immunadsorption study (though not a very helpful one - it just gives one sentence about it:

https://immunologie.charite.de/forschung/ag_scheibenbogen/schwerpunkte/#c30209007

Note the second study there, also.

Some speculation on Phoenix Rising that the Rekeland study was one of B cells, not B vitamins - I can't find any official info.

 

Hi @Cheshire, great list, thank you so much!

The immunadsorption and HyQvia trials are treatment trials, aren't they?

 

My information from the team was the immunadsorption study is finished, but the results are not published yet, it seems.

HyQvia (immunoglobulins) is on-going.

 

They're both medical interventions so I think they must be.

Here's some info on HyQvia (which I'd never heard of): http://www.hyqvia.com/

 

I participate in that study (but cannot say more). Maybe results can be published some time in 2018. I am myself very curious about the results.

 

From their December 20 press release:

Hemispherx recently reported that discussions are underway with the U.S. FDA on the next steps regarding a New Drug Application (NDA) for Ampligen® in ME/CFS, which afflicts more than one million people in this country, according to the Centers for Disease Control (CDC). Ampligen® is the only drug to have completed a Phase 3 clinical trial in the U.S. in ME/CFS.

https://finance.yahoo.com/news/hemispherx-successfully-completes-commercial-scale-140024889.html

 

Could someone please direct me to an up to date summary of ampligen? (=Rintatolimod)
I did google and find it on MEpedia but it looks like it was last updated in 2016?

 

I saw an interview with Dr Klimas ( easy to find) and she states that in dec 2017 she is doing a human trial. She is using gulf war patients and she says they present much like ME patients.she has cash because it’s gulf war illness. I tried to learn what drugs she is using and could not find out from the internet after typing in her name and her recent studies. She said in the interview that in her mouse models she was able to “ reboot the immune system”

Please post if you have info
Thanks

 

Maybe not what you want, but:
http://ir.hemispherx.net/Press_Releases