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General Advocacy Discussions

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  1. Adam pwme

    New video: PEM (2 mins)

    Adam pwme, May 1, 2023
    Replies:
    10
    Views:
    1,450
    Adam pwme
    May 2, 2023
  2. ME/CFS Skeptic

    ME/CFS advocacy successes in Germany

    ME/CFS Skeptic, May 20, 2023
    Replies:
    9
    Views:
    1,202
    tmrw
    May 22, 2023
  3. Adam pwme

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    Adam pwme, Sep 11, 2022 ... 2
    Replies:
    25
    Views:
    3,837
    Adam pwme
    May 25, 2023
  4. V.R.T.

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    V.R.T., May 26, 2023
    Replies:
    12
    Views:
    1,310
    Midnattsol
    May 30, 2023
  5. livinglighter

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    livinglighter, Jul 5, 2023
    Replies:
    17
    Views:
    1,475
    livinglighter
    Jul 7, 2023
  6. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    6,059
    AknaMontes
    Jul 11, 2023
  7. Robert 1973

    Advice for freelancers on pitching articles to newspapers, by Frances Ryan, Guardian journalist

    Robert 1973, Jul 17, 2023
    Replies:
    3
    Views:
    811
    adambeyoncelowe
    Jul 21, 2023
  8. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    52
    Views:
    10,409
    Sly Saint
    Aug 3, 2023
  9. Phoebe

    My Two Blogs; Puffins and Penguins & Puffs and Pens.

    Phoebe, Aug 11, 2023
    Replies:
    0
    Views:
    850
    Phoebe
    Aug 11, 2023
  10. Sly Saint

    The Brain Charity - website content on ME/CFS

    Sly Saint, Jun 17, 2019
    Replies:
    4
    Views:
    1,665
    Ash
    Sep 11, 2023
  11. Dx Revision Watch

    ME Association: iterations of objectives between 2021 and 2023

    Dx Revision Watch, Sep 15, 2023
    Replies:
    15
    Views:
    1,120
    Sean
    Sep 18, 2023
  12. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    Sly Saint, Jan 10, 2022
    Replies:
    1
    Views:
    1,203
    Sly Saint
    Oct 15, 2023
  13. Tom Kindlon

    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Tom Kindlon, Oct 28, 2023
    Replies:
    4
    Views:
    805
    Tom Kindlon
    Oct 28, 2023
  14. Hutan

    Responsible ME/CFS journalism - how to report on treatments?

    Hutan, Oct 21, 2023 ... 2
    Replies:
    20
    Views:
    1,959
    Sean
    Oct 30, 2023
  15. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3
    Replies:
    57
    Views:
    6,509
    bobbler
    Nov 11, 2023
  16. bobbler

    Influence and Participation toolkit?

    bobbler, Nov 17, 2023
    Replies:
    4
    Views:
    616
    Hutan
    Nov 18, 2023
  17. bobbler

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    bobbler, Mar 11, 2023
    Replies:
    11
    Views:
    1,518
    bobbler
    Nov 20, 2023
  18. Suffolkres

    Healthwatch England - Resource for Campaign Assistance

    Suffolkres, Jan 16, 2019
    Replies:
    17
    Views:
    1,997
    bobbler
    Dec 17, 2023
  19. adrienne

    FOIA denied CFSAC dissolution 2018/56 responsive records

    adrienne, Jan 5, 2024
    Replies:
    6
    Views:
    728
    adrienne
    Jan 7, 2024
  20. FMMM1

    cognitive dissonance - radio 4 program

    FMMM1, Mar 20, 2024
    Replies:
    0
    Views:
    374
    FMMM1
    Mar 20, 2024
Showing threads 181 to 200 of 208

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