Search results

  1. RedFox

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Of course more educated people are more likely to be diagnosed with ME/CFS. Because they can do the research and self-advocacy necessary to get diagnosed.
  2. RedFox

    It’s ‘time for a conversation’ on assisted suicide dangers, says Liz Carr, ahead of BBC1 documentary

    Medical aid in dying should be easily accessible to anyone with a serious physical or mental health condition. My body, my choice. Just because social or economic factors are factors influencing some people's decision to get MAiD doesn't justify denying bodily autonomy to everyone.
  3. RedFox

    Open UK: Investigating family planning, pregnancy, and parenting for people with ME/CFS - the faMELy study

    I think studying having children and ME/CFS is valuable, as this area isn't well-researched, despite the fact that raising a family is a major life priority for many people, illness or not. Some people may decide against having kids due to ME/CFS but others may want to, be have a pool of...
  4. RedFox

    Long Covid Moonshot Initiative

    I sent a letter to my Senators Casey and Fetterman.
  5. RedFox

    An Update of a Theory

    Your hypothesis attempts to account for every feature of ME/CFS, especially PEM, which is sorely missing from most hypotheses. I wonder what experiments could be done to prove or disprove this model. DecodeME might be helpful if it highlights certain immune pathways.
  6. RedFox

    Opinion Researchers See Hope in Symptom-Guided Exercise for Long COVID With Postexertional Malaise, 2024, Bock (in JAMA)

    I don't understand what these people are even on about. If they did a HIIT workout and experienced no PESE, they don't have PESE...it's fine for them to exercise. Addendum: And when these people talk about PEM, they often have no idea what PEM even is. They're so narrowminded that they think an...
  7. RedFox

    Ampligen for ME/CFS

    No real news. They're just trying to keep investors "in the loop" and build PR.
  8. RedFox

    Review Waste Clearance in the Brain, 2021, Kaur et al.

    I don't drink alcohol but I'm also sensitive to caffeine. It's hit-and-miss. Sometimes a cup of black tea keeps me awake without side effects, but other times I get jittery.
  9. RedFox

    ME/CFS vs atypical depression

    I used to suffer from something like this. The cause was having the wrong balance of fun vs. work/stressful stuff in my life. Keep in mind that that balance looks very different because I'm autistic. I wasn't sad all the time, I just couldn't cope with my workload. I was dramatically functional...
  10. RedFox

    Physical Activity, Long-COVID, and Inactivity: A Detrimental Endless Loop, 2024, Lippi et al.

    I've been pretty tired at times, but my tongue has never hung down to the floor like that.
  11. RedFox

    What PEM is like at relatively high physical function

    I can't do tasks because you simply don't have the energy. I try to start things, but tell myself I will rest a few minutes first, and then hours pass. (Often, time seems to pass quickly.) You have the motivation and drive for things but just can't start them or stay on track. However, you don't...
  12. RedFox

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Agreed. This paper is mediocre, but it's in the realm of biomedical, not biopsychosocial, research. Let's use it as a starting-off point. "We appreciate the attention you paid to ME/CFS but this isn't enough to lead to treatments that really help us. We'd like further work, like higher funding...
  13. RedFox

    “AI will cure cancer” misunderstands both AI and medicine

    You can't find technical solutions to problems with people.
  14. RedFox

    Trial Report Identifying the mental health burden in ME/CFS patients in Switzerland: A pilot study, 2024, König et al

    This is a very important study. It shows that telling people with ME/CFS that their illness is psychosomatic makes them suicidal.
  15. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    If DecodeME provides good results, I wonder if there would be any benefit to an even larger GWAS in the United States or the US plus several more countries. We have a larger population to pull from. Also, I wonder if it would help that we're more racially diverse. There might be genes that are...
  16. RedFox

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    After taking some time to read the study, I can conclude there are good parts and bad parts. The NIH was quite thorough and delivered additional evidence that ME/CFS is biological. Many of their findings point to the immune system, others point to the nervous system. On the balance, this study...
  17. RedFox

    Channel 4 News 19 February 2024: Features Clare Norton, mother of Merryn Crofts

    The TV segment Channel 4 did is very well done, I'm grateful to the show's producers in addition to Clare Norton and Sean O'Neill for telling their childrens' stories.
Back
Top Bottom