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  1. RedFox

    Can exercise attenuate the negative effects of long COVID syndrome on brain health? 2022 Teo and Goodwill

    My PEM may have changed too, but it's hard to say if it's a difference in what symptoms I had, or a difference in what I noticed. But in the first few months of my illness, it was odd neuro symptoms. My mind was "jittery" or "glitching". It sort of felt like I was trying to think, but I was...
  2. RedFox

    Can exercise attenuate the negative effects of long COVID syndrome on brain health? 2022 Teo and Goodwill

    I mean, hey, if you don't have PEM, knock yourself out. But I doubt it will be curative. Lifestyle changes like exercise tend to be about managing, not curing, a chronic illness. Disappointingly, this paper doesn't explicitly say PEM is a contraindication for exercise. But they're at least...
  3. RedFox

    USA: The RECOVER Initiative - Long Covid research

    I'm very proud of my government talking very seriously about ME/CFS and long Covid.
  4. RedFox

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    This paper is full of solid recommendations. One thing that stood out to me was their recommendation that there should be 2-4 ME specialists per 1 million population. This sounds low, but that would be equivalent to 660-1320 ME specialists in America or 134-268 in the UK. There would be at least...
  5. RedFox

    USA: Massachusetts ME/CFS & FM Association news

    It's not at all wrong for Dr. Komaroff to refer to the connections between ME and LC as "emerging." It's a condition that's less than three years old. That's an eternity for people who are suffering, but not long for science. LC is far newer than most other diseases, which are probably as old as...
  6. RedFox

    News from Scandinavia

    What's the deal with Denmark? It's really a shame that they're so stubborn about ME being a real illness. Heck, even the UK seems better. At least in theory, they have solid guidelines. The CDC's website straight out says ME/CFS is a biological condition. But Denmark is really stuck with all...
  7. RedFox

    Open Protocol: Multimodal MRI of myalgic encephalomyelitis/chronic fatigue syndrome: A cross-sectional neuroimaging study 2022 Shan et al

    The use of sedentary controls is a big deal. They're at least trying to eliminate the potential effect of activity level. While the average sedentary control will be less active that the average pwME, it's still a step towards rigorousness.
  8. RedFox

    Sore throats swollen glands

    That's good to know. I didn't know because I don't get lymph node swelling or tenderness as an ME symptom. I have experienced sore lymph nodes at times, but only when a healthy person likely would as well. For example, if I get a cut in my mouth (presumably my immune system is reacting to the...
  9. RedFox

    At what point could someone with ME have somatic symptom disorder?

    Looking at all these facts and definitions hasn't taught us much. My conclusion is the same as before: Whether you need psychological help depends on whether you feel the time you spend on your illness is helpful or harmful. There are multiple factors, but in general, the time I spend on my...
  10. RedFox

    Sore throats swollen glands

    This is brilliant. Do swollen lymph nodes usually happen during PEM? (Sorry, I don't have this symptom.) Then you can do a study with healthy controls and pwME doing a CPET and seeing how much their lymph nodes swell.
  11. RedFox

    Updates on status of ICD-11 and changes to other classification and terminology systems

    October 1 has passed, which means that in the US, the new unambiguous code for ME/CFS is available for use by clinicians.
  12. RedFox

    At what point could someone with ME have somatic symptom disorder?

    I will come up with a more detailed response when I have time, but this is all very informative. This further convinces me I was misdiagnosed. I always got the impression my psychologist just put that on my chart to help me get disability.
  13. RedFox

    At what point could someone with ME have somatic symptom disorder?

    The fact I've been diagnosed with somatic symptom disorder got me thinking. I'm not asking for medical advice, but for general information. The current definition in the DSM-5 revolves around excessive thoughts, feelings, or behaviors related to symptoms. And it doesn't matter if these symptoms...
  14. RedFox

    Chinese herbal medicine for the treatment of chronic fatigue syndrome: A systematic review and meta-analysis 2022

    Agreed. A meta-analysis of low-quality trials will be of similarly low quality. If all the studies have systemic bias, combining them can't help. Garbage in, garbage out.
  15. RedFox

    A Novel Approach to New Types of Novel Novelty

    A Novel Approach to New Types of Novel Novelty Blog post by Derek Lowe https://www.science.org/content/blog-post/novel-approach-new-types-novel-novelty The comments discuss limitations in the knowledge of grant application reviewers, and how scientists may hype up how new something is because...
  16. RedFox

    Research priorities for ...(ME/CFS): the results of a James Lind alliance priority setting exercise, 2022, Tyson et al

    Here's some context: This paper describes how the ME/CFS Priority Setting Partnership decided on their priorities. I'd say their approach to coming up with priorities was sensible and inclusive. Their priorities are quite good too. Very similar to where I'd prioritize research.
  17. RedFox

    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    This concept seems pretty similar to what we have in the US. Dedicated centers for doing testing on outpatients are common here. They're sometimes affiliated with local hospitals, but not always. Sometimes testing is done there, sometimes it's done at a hospital. For example, the last time I...
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