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  1. wdb

    Glasgow: Holistic Chronic Fatigue Syndrome/ME service

    I thought the NHS no longer funded homeopathy but it seems this of one of two remaining sevices. https://www.independent.co.uk/news/health/nhs-homeopathy-uk-alternative-medicine-hospital-camden-royal-london-hospital-for-integrated-medicine-a8253061.html
  2. wdb

    UK - Discussion of how many patients use NHS ME/CFS clinics

    Presumably 8000 referrals does not necessarily mean 8000 new ME/CFS cases, some could be pre-diagnosis or misdiagnosed and might be given a different diagnosis, some might be 'oxford criteria' CFS cases, it may only be a small portion are CCC/ICC ME cases.
  3. wdb

    ME Association Quick Survey Nov 18: Do you have a healthcare plan that is consulted, adhered to and kept up to date...?

    I'm not even sure what a healthcare plan would look like, my GP and I both agreed that currently they have nothing really in the way of treatment to offer me.
  4. wdb

    BBC2, 9pm 1 Nov: Diagnosis on Demand? The Computer Will See You Now

    Exciting stuff but but have to say I'd be a little concerned over who owns the AI and how much control they will have over it I mean will the AI be trained to best serve the needs of the patients or to best serve the balance sheet of the medical industry.
  5. wdb

    Withdrawal from publication of 'Traditional Chinese medicinal herbs for the treatment of idiopathic chronic fatigue and chronic fatigue syndrome'

    I don't know how much confidence I have that a Mental Disorders Group to know much about assessing research and evidence quality, more likely they are just kicking the competition off their turf, perhaps we could ask them to comment on the recent re-analysis.
  6. wdb

    BBC trust me I’m a doctor tests a placebo for back pain and sees significant results

    I suspect these measurable effects are knock on effects from placebo/nocebo induced emotional changes such as changes in adrenaline, blood pressure or perspiration. I'm pretty sure placebo penicillin wouldn't clean up a case of meningitis.
  7. wdb

    Ben Goldacre: Building RCTs into GP practice

    I could see these randomised GP trials working very well for well defined conditions with objectively measurable outcomes such as testing treatments for high cholesterol. For ME/CFS or pain disorders or mental health though we'd just have the same old problems with non-treatments that only...
  8. wdb

    BBC trust me I’m a doctor tests a placebo for back pain and sees significant results

    This is a good analysis of placebo effect: Is the Placebo Powerless? — An Analysis of Clinical Trials Comparing Placebo with No Treatment RESULTS ...As compared with no treatment, placebo had no significant effect on binary outcomes, regardless of whether these outcomes were subjective or...
  9. wdb

    Netflix "Afflicted" - ME included

    It's also cached a little better here: https://web.archive.org/web/20180918135055/http://www.latimes.com/opinion/op-ed/la-oe-rehmeyer-scientific-ethical-lapses-in-neflix-series-on-chronic-illness-20180917-story.html
  10. wdb

    NICE seeking committee members for Me/CFS guideline

    Dietician is a bit surprising to see listed, is there sound science specifically linking diet to ME beyond the link to general well-being ?
  11. wdb

    Acceptance and Commitment Therapy for MuScle Disease (ACTMuS): Protocol for a two-arm randomised controlled trial of a brief guided self-help ACT prog

    She might as well just accept she practices alternative medicine at this point. How is her research in any way different at all from this commonly used alternative medicine methodology criticised by Edzard Ernst ?
  12. wdb

    Brian Hughes (2018): Psychology in Crisis

    I noticed that the first chapter is available to read on the book publishers website.
  13. wdb

    Netflix "Afflicted" - ME included

    Yes they followed his whole trip, he spent a few days there getting treatments.
  14. wdb

    Netflix "Afflicted" - ME included

    It was Lyme disease, looking at the fund page updates I think this alternative medicine centre in Kansas is where it was spent.
  15. wdb

    Netflix "Afflicted" - ME included

    Confirmed https://uk.gofundme.com/jakesidwell
  16. wdb

    Discussion - Does ME involve brain inflammation?

    Where should the bar be set in terms of evidence justifying the claim/implication that brain inflammation is present ? Would it be set too high to say ME brains should be able to be differentiated from controls under blind conditions using some medical imaging or measuring procedure ?
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