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Exactly. The idea that the patient has to be forced into some kind of bizarre 'confession' about their 'mental health issues' before qualifying for real support and treatment, and not even getting it then, is so barbaric I don't have the words for it. It is a particularly disturbing and cruel...

The fact that proper masks (i.e. P2/N95 standard) were not even on that list tells us everything we need to know about this clown and his 'advice'.

:):hug:

:rofl: It's a miracle!

Just another example of why celebrities are not good spokespeople for diseases.

Article was published in one of the most prestigious and prominent medical journals, in 1982. More than forty years on, how much has changed in society or medicine on this issue? Indeed, it is arguable that, courtesy of the psychosomatic gang, things are worse.

Some good reasons to keep any relationship with AfME informal and free range, as it were. Those are some of S4ME's main strengths, I think. We are not too constrained by bureaucracy and diplomacy and funding requirements. We should have only three guiding principles: stay focused on the science...

Some clarification: Painful and requiring much more effort than it should. At least in the sense of them being normal and healthy, but being required to operate outside of their normal parameters by some other pathology within the body. Being overloaded by excessive external demand on them for...

A 75% drop-out rate on its own renders this study invalid. psychosomagicians :D

Both. A combination of projection and defense mechanism. No doubt some other factors in there too, like wanting to hang onto their empires, status, and incomes.

Leaving aside possible secondary muscle wastage and weakening through insufficient use, I agree about strength. I still have normal muscle strength for my age, maybe even above average. I can still pick up and carry heavy weights, and a number of clinical assessments (mainly physios) over the...

While I agree that there is always the need to have new people coming in and moving up the ranks, it is also important to maintain the corporate memory from the old hands. New hands usually don't know where the bodies are buried, who to trust, the weaknesses in our and our opponent's arguments...

Media outlets in the UK today are under-resourced and this is a complex story. But one of the most important in several decades, and there are no excuses for the media to continue ignoring it, downplaying it, or misreporting it. Some serious deep-dive fearless investigative journalism is...

Was immediate for me, and started with a violent medical event. I woke up fine on a Saturday, and played squash. Went home had a shower, and then did some shopping and had lunch. Came back home and started feeling unwell, which deteriorated seriously over the next hour or so. Had to be taken to...

They have learned the marketing lessons well from the previous attempts at psychologising unexplained health problems. They have a monopoly over a desperate audience, who have nowhere else to turn, and effectively no power to refuse them, and they are exploiting the shit out of it. It is very...

Did they consider that the solution is to stop arbitrarily assigning causation to health problems they don't understand yet?

Same basic experience here. It is one of the most fundamental features of ME/CFS, maybe even the most fundamental, and certainly one of the most important clues.

It is impossible to be too cynical about the state of medicine on these issues.

Trauma has become a fad and an industry, and is out of control. It is being applied to every slightly unpleasant experience. And not just medicine. The general scientific project is struggling, for a variety of reasons.

But we knew from ME/CFS that if this is what we think it is, this post-viral condition, this is going to be hard to get an answer to. Only if you don't do robust honest science on it. Which is what has happened for the last 50 years.