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I thought the NHS no longer funded homeopathy but it seems this of one of two remaining sevices. https://www.independent.co.uk/news/health/nhs-homeopathy-uk-alternative-medicine-hospital-camden-royal-london-hospital-for-integrated-medicine-a8253061.html

Presumably 8000 referrals does not necessarily mean 8000 new ME/CFS cases, some could be pre-diagnosis or misdiagnosed and might be given a different diagnosis, some might be 'oxford criteria' CFS cases, it may only be a small portion are CCC/ICC ME cases.

I'm not even sure what a healthcare plan would look like, my GP and I both agreed that currently they have nothing really in the way of treatment to offer me.

Exciting stuff but but have to say I'd be a little concerned over who owns the AI and how much control they will have over it I mean will the AI be trained to best serve the needs of the patients or to best serve the balance sheet of the medical industry.

I don't know how much confidence I have that a Mental Disorders Group to know much about assessing research and evidence quality, more likely they are just kicking the competition off their turf, perhaps we could ask them to comment on the recent re-analysis.

I suspect these measurable effects are knock on effects from placebo/nocebo induced emotional changes such as changes in adrenaline, blood pressure or perspiration. I'm pretty sure placebo penicillin wouldn't clean up a case of meningitis.

I could see these randomised GP trials working very well for well defined conditions with objectively measurable outcomes such as testing treatments for high cholesterol. For ME/CFS or pain disorders or mental health though we'd just have the same old problems with non-treatments that only...

This is a good analysis of placebo effect: Is the Placebo Powerless? — An Analysis of Clinical Trials Comparing Placebo with No Treatment RESULTS ...As compared with no treatment, placebo had no significant effect on binary outcomes, regardless of whether these outcomes were subjective or...

A couple of interesting bits

It's also cached a little better here: https://web.archive.org/web/20180918135055/http://www.latimes.com/opinion/op-ed/la-oe-rehmeyer-scientific-ethical-lapses-in-neflix-series-on-chronic-illness-20180917-story.html

Dietician is a bit surprising to see listed, is there sound science specifically linking diet to ME beyond the link to general well-being ?

She might as well just accept she practices alternative medicine at this point. How is her research in any way different at all from this commonly used alternative medicine methodology criticised by Edzard Ernst ?

I noticed that the first chapter is available to read on the book publishers website.

Yes they followed his whole trip, he spent a few days there getting treatments.

It was Lyme disease, looking at the fund page updates I think this alternative medicine centre in Kansas is where it was spent.

Confirmed https://uk.gofundme.com/jakesidwell

Where should the bar be set in terms of evidence justifying the claim/implication that brain inflammation is present ? Would it be set too high to say ME brains should be able to be differentiated from controls under blind conditions using some medical imaging or measuring procedure ?