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@dave30th says in the Virology Blog post: These questions in turn raise the issue do people/groups need to take any action at present, both in terms of supporting Cochrane for the action they have taken so far, reinforcing the need to move ME/CFS out of the mental health context into a more...

But that risks undermining the researchers belief system. They would not want to risk demonstrating any mood issues were a normal response to a major disabling condition. Also it is dangerously heading towards an adequate experimental design with actual control groups and things like that.

This 'announcement' seemed to first appear in a reply to a comment on the Review in October, and when I looked earlier this week I still did not find anywhere else. Perhaps it was published in this more conspicuous location with the site updates following the decision to reject the redraft of...

Wouldn't it be more informative to study children and adolescents with ME who do not have mood problems, as identifying how they cope with a major disabling condition might give ideas of how to support all those who reasonablely struggle with such a condition whilst being misunderstood by...

I read somewhere that Cochrane have a policy that they only withdraw Reviews with the agreement of the authors. Some what belatedly they seem to have been in discussion with Larun about Bob's complaint, though given Caroline Struthers' post and others, we know his were not the only complaints...

Unfortunately at present this only relates to the Exercise/GET review and not the CBT one. However presumably if Cochrane accept there is no scientifically valid evidence supporting GET, by implication they must also accept there is no such evidence supporting CBT as the same methodological...

Given that Cochrane have now implicitly accepted there are problems with the current exercise review, should they not be withdrawing it, pending the availability of a corrected and updated version.

This Cochrane statement is very relevant to us, given the exercise review on the face of it would seem a prime example of their current approach getting it very wrong. If Cochrane retract the exercise review and if they manage to get the conflict of interest policy right it will at least put...

In terms of specific words again the problems could relate to eyesight, visual processing or at a language level of word recognition. @DokaGirl, are you aware of having a preferred reading strategy, some people tend to read by converting the written form mentally into sounds, so getting to...

There are a number of possible levels of deficit that can cause problems reading. It could be due to problems in visual perception, be it problems with the eye itself or the brain's processing of visual signals. If this were the case any problems would effect all vision, not just reading. So...

I do feel that the BPS cult, intentionally or otherwise, takes advantage of and deliberately exaggerates the gaps in our understanding of ME to push their preferred psychological interpretations and behavioural interventions. Having said that they make no attempt to evaluate their own theories...

Presumably the only potentially hopeful sign was that Larun felt there was a need to leak to the Reuter's journalist that Cochrane were considering withdrawing in some fashion this review, and to brief against them with the false 'bullying patients' narrative. Presumably Larun and the BPS crew...

Cochrane said in October "The review author team have advised us that a resubmission is imminent. A decision on the status of this review will be made once this resubmission has been through editorial process, which we anticipate will be towards the end of November 2018." This is potentially...

On the Cochrane site there seems to have been no change in the current 'everything is pending' situation. The undated 'Notes' attached to the exercise review itself about its status under 'Information' (see bottom of page...

https://alifehidden.com/

I thought it might be useful to include a link here to our original thread on the withdrawal, that was not, of the Cochrane GET review, which is now up to 38 pages of posts: https://www.s4me.info/threads/cochrane-me-cfs-get-review-temporarily-withdrawn.6225/ I personally feel that Caroline's...

Caroline Struthers' letter to Cochrane Governing Board I noticed on Anil about ME's Facebook page the following link: https://healthycontrolblog.wordpress.com/2018/11/29/my-complaint-to-the-cochrane-governing-board-about-the-cochrane-review-of-exercise-for-chronic-fatigue-syndrome/ Caroline...

Beste ønsker Norge (Google Translate for 'Best wishes Norway')

It sounds like you have done the right thing @Trish, but also perhaps right not to push it further until at least you have received a reply from the agency. If the advert itself does not contravene advertising standards, the main problem here is that the agency chose to effectively endorse this...

I have so far just read through the review once and may be unfair in my comments but two things struck me in an otherwise clear and appearantly well argued review: 1. In relation to 'CFS' the authors say: however given the limited resources for diagnosis, mentioned by the authors, and the...