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A remarkably sweeping statement that ignores a significant ammount of research literature, patient survey evidence, the patient experience and the preferred definitions of the condition. [added - By definition ME/CFS involves post exertional malaise, which is a worsening of symptoms following...

The NIH did provide a fairly large grant to the UK ME/CFS Biobank this year, see https://www.meassociation.org.uk/research/research-projects/uk-mecfs-biobank/

My feeling is that the concerns raised about the exercise review could not be adequately dealt with and any resubmission passed through an apropriate editorial process in this proposed timescale. Presumably the resubmission is unlikely be subject to peer review before the end of November. It is...

Although PACE was pre-registered, they changed the design once the data was collected, so it was no longer as pre-specified, though the authors have claimed as they did not look at the data before the changes it still counts as a pre-specified study. Being pre-registered does not guarantee...

@Hutan a great first letter. Do keep us updated.

The apparent lack of any controls is an important issue. The most obvious control for an influence of female hormones on ME would be men with ME with matched levels of disability/impairment. Any serious study would also have female controls with a different but comparably disabling condition...

Mine too.

I did look at the Reuters site to try to post it under the article with my heartfelt thanks to Larun for preempting her discussions with Cochrane and leaking this travesty to the press and to Kat Kelland for taking her points at face value despite Cochrane's unreasonable contrary assertion and...

Those desperate anti science patient activists that are bullying the poor BPS researchers, they even managed to disguise themselves as respected PhDs and Proffessors at major academic institutes. The lengths they will go to, concealing their major disabling illness, studying and researching for...

Stating the obvious for readers here: Can someone please inform physicians that we have a 'new age of patient autonomy' particularly in relation to ME/CFS, to those misdiagnosed with the bizarre unscientific psychiatric diagnosis of MUS ('medically unexplained symptoms' syndrome) and the...

Rather like the PACE claims to be cost effective, this only has any meaning if the treatments actually work. Certainly [as] with ME it is unlikely that any MUS approach could provide an effective treatment as it is just plain inappropriate. The treatment may drive patients away from the medical...

This on one level tells us nothing that does not seem obvious, high levels of pain are associated with lower quality of life and lower mood. But more importantly correlation does not necessarily mean causation, I have more pain when my ME is bad but also I have lots of other issues when my ME is...

Brain not working enough to attempt to participate in the survey today, but, when I thought how I would rate would rate supplements I have taken in the past, in retrospect it is hard to distinguish those that I have taken the results of which I could support with specific anecdotes relating to...

On a more serious note it is absolutely shocking the number of NHS specialist ME/CFS Services that host 'therapists' fixated on 'conversion' theories of ME that pressurise people with ME to relive as many historic traumas and stressors as possible. Presumably they do not record incidences of PEM...

A profoundly worrying article, I couldn't face reading it all the way through at present, will have to brace myself to face it. However I can unambiguously say I have never experienced sexual abuse or sexual harrasment, indeed I have no recollection of any childhood traumas beyond life's normal...

Although I don't think I have delusions, I do sometimes find myself confabulating, unhelpfully filling in gaps in my memory with inventions without being aware I am doing so. Memory problems are regularly reported in relation to ME, but I have not come across mention of associated confabulation...

Even better news! This makes much more likely the long term possibility of Cochrane actually coming up with something in relation to ME that is not only not harmful but also useful. [Edited to correct grammar. So excited I keep coming back and rereading this thread.]

Exciting times. Hopefully we see more good excitement and less bad excitement.

They acknowledge a physical basis of ME, but like Prof Crawley have decided cortisol is a prime factor. She believes we can be cured by improved sleep hygiene in addition to the usual GET/CBT, but Aberdeen seem to have linked this to a disordered stress response which sounds like yet another...

So the predators have spotted our sickness behaviour and struck. The predatory psychologists and psychiatrists have identified a group of people made vulnerable by their sickness and used us as a stepping stone in their empire building.