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I agree with @Jonathan Edwards that a feasibility study of a hundred sounds a lot. My own experience was that no matter how well you think you have designed the trial there are always practical issues irrelevant to the purpose of the trial that need to be sorted out, be it if venues are...

One thing the University of Bristol has in it's favour in terms of trial design is that they have received vast amounts of world class advice on this from the many people who have commented and written on Prof Crawley's work. I hope that the BRTC formally acknowledge the information and time...

As an undergraduate psychology student it was generally regarded that in practice whole sections of psychology were not real science, social psychology being the main culprit. Further as a trainee Speech & Language Therapist there was a real awareness that clinical trials of therapeutic...

Am still reading it (unfortunately I have not completed a whole book in over three years, though I used to read three or four a week), however Brian Hughes' new book "Psychology in Crisis" deals extensively with the replication crisis in psychology and also with the PACE fiasco. Hughes suggests...

I agree that there are robust comments about named individuals in relation to researchers on many posts and forums. I believe the majority in our context are justified, though anyone unfamiliar with this field might misinterpret it as bullying. Personally I have accused, for example, Prof...

I would second that. I continued working longer that I should, until I was eventually force to stop. Then I went into the process of having my contract terminated with no idea of whether I would get pension on grounds of ill health or not. Also several years before being forced to take early...

People at times say they are leaving the field but in reality are only moving sideways into such as the unevidenced psychiatric non-diagnosis of 'Medically Unexplained Symptoms' syndrome. They are attempting to avoid the increasing clamour associated with ME, but still apply the same bad science...

It may be that most doctors are not so stupid as to ignore the signs of say a heart attack, despite the MUS model's advice to do so. However, I suspect it likely that in areas commissioning full blown MUS services, it will take a number of deaths before anything is done about the approach, even...

It is a matter of complaining to the GMC (general medical council) and in theory they can suspend or revoke or impose conditions on a doctor's licence to practise. However, as with Dr Myhill's recent group complaint, any complaints relating to CBT/GET have been dismissed. (Though complaints...

People with ME have higher incidences of comorbid conditions than in the general population, so we are more likely than the average person to get cancer, have heart attacks, etc. However under the BPS model it may be that we are less likely to have appropriate assessments. This is made more...

Unrealistic expectations - at present it is unclear that many or even any people fully recover, but this model implies complete recovery is possible and further that as there is believed to be no ongoing underlying medical disorder it implies any improvement/remission will be permenant. This...

Although I agree this is a good idea, I also wonder with others above how it would be possible to distinguish between genuine cases and malicious misreporting. Though the latter is likely to be infrequent it would be difficult to see how it could be prevented. Would there be legal implications...

For me S4ME is a social outlet, a place of support, a source of information and most importantly a way of developing and refining my understanding of ME. This is so important given we need to develop a consensus in the language used to describe research objects, clinical reality and the patient...

This already is or was some form of international register of people with ME. I am struggling at present to remember details other than a vague image of a global map with tabs with numbers of people registered in each country. I think it just had numbers and home country and have a feeling it...

Although taking on board your point and perhaps having equal ignorance on these issues, I would question if any biological processes would have the degree of fluctuation, day to day, month to month, year to year or decade to decade that you can see in some people with ME. I would argue that if...

@mlapenna, a very constructive response to the points raised. My brain is not functioning so well this morning, but hopefully will come back to you later. [added - though first thoughts are that you definitely need to include aspects to worry about, including information of the dangers of...

Interesting but can this explain the relapsing and remitting form of ME?

Unfortunately this does not give any insight into the failure of peer review we have seen in relation to a number of ME/CFS studies, specifically those from the BPS cult.

Having now read through the list of recruiting trials and the associated summaries it is apparant that there is enormous variation in standards and quality. I have concerns about a couple of those included, particularly where the Oxford Criteria seem to be still being used. With these I feel...

Sorry @mlapenna I had not found the list of participating research projects on the site, so obviously withdraw my point relating to this. Though it may be with noting that several of us missed this when exploring the your site. [added - I am getting confused, it seems that the list of research...