Search results

In the mid 1990s I did a lot of work on advocacy and equal opportunities for people with communication disability with Social Service staff in Sheffield. There were fantastic developments and a real will by service managers to empower those without a voice. However, with the onset of cut backs...

I too have seen this happen in the UK, it was in the 1990s in a general elderly ward. The lady had multi infarct dementia. The restraint was directed by a consultant but not clearly recorded in the medical notes. The family took this opportunity to have her dog put down and her home put on the...

Over twenty years ago I went into complete remission following a period of a raw food, organic vegan diet, with lots and lots of supplements under a nutritionalist. However it is impossible to say whether this was a causal factor or coincidental to a spontaneous remission. Also I was trying lots...

It is difficult to know in the long run what strategy will be best, however in this case there are clear problems and simple remedies that are obviously being blocked by editors' prevarication and obfuscation, so I think so far @dave30th is being self evidently rational and direct. Most, except...

A great letter. Clear, fair, but pulling no punches. The BMJ can not keep protecting Prof Crawley's scientific malpractice and the PACE apologists' old boy network indefinitely. There must be a point when the BMJ admits they got it wrong. The BMJ is wholely owned by the BMA, could pressure be...

Is it possible to distinguish between Chronic Inflammatory Response Syndrome caused by mould, ME caused/triggered by mould and ME exacerbated by a hypersensitivity response to mould? Certainly there are a number of people with an ME diagnosis that believe their ME was caused by mould, so is...

It is incredible that clinicians with decades of experience of working with people with ME have not listened to their patients, that they have so little insight in the the subjective reality of their patients. Even if there were substantial psychological causal factors in ME, for which there is...

If ME is a fashion statement I think I am getting it very wrong. For fashion to work it needs to be displayed, but over the twenty five years of my ME my social circle has steadily declined. I see only a small fraction of the number of people I did in the past, and I can regularly go for a week...

In this context is the suggestion that ME is caused by environmental factors, triggered by environmental factors or exacerbated by them? Presumably until we understand the causal mechanisms underlying ME we can not begin to answer this question. Personally I don't believe that my ME is caused...

I look forward to reading this paper. It will be a useful reference to give to journalists etc when the PACE appologists again wheel out the tired distraction that any problems are due to those horrid militant ME patients refusing to belief our bad science.

Thank you to Forward-ME for taking this robust stand against the misinformation and indeed downright lies in the recent SMC so called 'fact sheet' on ME. For too long the SMC has been allowed to breach its own guidelines and act as a biased cheerleading section and apologists for the advocates...

Have made a donation, and hope to be able to contribute more, there there is such an excellent return for the ME community for this investment. @dave30th does the 30 days represent a fixed cut off that all further contributions have to be in by?

We certainly need to find some way to answer the question is the BMJ Open's editorial and peer review system incompetent and allowing through lots of articles with procedural and methodological flaws or is it that it is corrupt specifically allowing the BPS brigade to publish badly administered...

A restricted elimination diet takes so long to evaluate everything. I spent well over a year and identified problems with gluten, caffeine and I think alchol, which I now avoid. However I did not get onto looking at many food stuffs such as soya, chocolate which is for me an IBS trigger or...

I have no specific knowledge, but this seems to be a very important topic. Could we as a group ask them for clarification of their views on monitoring such as outcome switching and collecting subjects response before trial registration, and their views on using only subjective outcomes in...

Thank you to all involved. Only able to process a part of this tonight, but will return.

Is there any way to ensure that potential participants and their families have objective information on the potential harmful side effects of this treatment as Bristol seem to intend to continue with this study?

It is alright for Prof Crawley to libel and to slander specific individuals (eg David Tuller), organisations and charities (eg the MEA) and whole groups of people (ie people with ME), to lie and misrepresent ethical and methodological flaws in her research, to perpetrate medical abuse on...

Well most people reading this will be aware of examples of where peer review has failed, and also where journals ignore concerns raised by reviewers.

Would the ME Association purple book be helpful in this context? I got a copy intending to then hand it on to my GP, but have not got round to it yet. I must admit I find learning the new vocabulary to understand the biological systems sufficiently to adequately understand and summarise...