Search results

I was pondering the question how could QMUL, implicit in their own claims, miss the facts that one of their Proffessors was retiring and that this would mean that they would not be able to access a significant set data even though they were concurrently fighting several prominent freedom of...

It may suit QMUL to say that White is unavailable to access the PACE data because he is officially retired from his main job, but he is not so retired that he can not give lectures to various groups including the Insurance industry or that he can not head up the PACE ten year follow up under...

The Virology Blog seems back up now. Good as the Trail by Error posts are such a fantastic resource

My memory is unreliable but isn't Peter White leading the ongoing follow up of the PACE study for QMUL? Presumably this means that QMUL are being deliberately disingenuous in their statement that White is retired. If he is available for this follow up, how is he not available to direct someone...

In relation to saying aerobic exercise is bad for people with ME there are now many studies, including those by the letter's authors indicating that over a period of days that it exepacerbates the functional and physiological symptoms of ME, and surely having demonstrated that it would be very...

In Buddhism there is a major tradition of meditation techniques designed to develop specific personality traits, the most common being 'metta' that is variously translated as loving kindness or compassion. We generally think of the mindfulness techniques, such as focusing on the breath or on an...

Ah, but this work was not done on CFS subjects as defined by the Oxford criteria by skilled researchers who employ those internationally recognised scientific tools such as outcome switching and redefining recovery. Surely they would have had much better outcomes if they had chosen the right...

A great letter clearly summarising why aerobic exercise as treatment for ME is contraindicated and why the studies advocating GET are profoundly flawed. It will be useful to give to clinicians advocating GET.

I have occasional come across comments relating to a UK doctor who asserts specific spinal problems are a diagnostic feature of ME. I remember being confused by this at the time, but can not recall any further information. However usually here there will be someone with the details more readily...

If the previous form of other 'establishment' responses is anything to go by, they will select something that was not in the letter and respond to that or deliberately misunderstand a point in the letter and respond to that misrepresentation, but ignore all the main points. They may also add the...

Let's hope that this flawed SMILE study proves to be the reductio ad absurdum of the BPS mistreatment of ME and at last the PACE appologists and their establishment enablers are forced to step back from their irrational faith in unblinded trials relying on self reported measures. It is...

And at a time when Mental Health Services are severely over stretched.

So there is definite overlap between the proponents of CBT in IBS research and in ME/CFS research and both use a specially designed form CBT to try to convince participants that they have a false understanding of their condition. Prof Little's outline of his study (see Everitt et al, 2015, link...

It is worrying that the MEGA Team seem to remain squarely behind Exther Crawley declining to comment on the methodological flaws of her PACE based research and her slander of the ME Association and by implication of their Medical Advisor Dr Charles Shepherd, a fellow Mega Team member, on Radio...

In this context it is interesting to note that Prof Paul Little of the University of Southampton is a member of the MEGA Team and is also currently leading large scale research in the use of CBT and exercise as treatment for IBS, see https://www.southampton.ac.uk/medicine/about/staff/psl3.page...

Thank you. Yes it terms of timing it sounds as if it must have been the one, though I can't be absolutely certain as I did not keep any paper work. The attempting to replicate a previous Glasgow study rings a bell, though my memory is not always reliable. In relation to me, they had no...

I relate to problems with sugars and carbs, but also wonder if a large meal, regardless of the component food stuffs, can also trigger PEM.

'Secondary victimisation' is also related to power dynamics. Part of what we see in the current medical mismanagement of ME relates to a struggle to assert power and control. On the whole I have been very lucky to have had supportive experiences of doctors, only having had two negative...

Esther Crawley was one of the people who wrote the current discredited NICE guidelines that set current practice in the UK and allows her to inflict CBT and GET on children and adolescents in her clinic. She is part of the establishment that has permitted this medical abuse.

I find it hard to recognise general problems in intellectual functioning that are ongoing. As discussed in other threads problems can just become the new normal. However at those times when my brain actually works well it becomes very apparent that in general it is not working well.