I in general agree with @Luther Blissett, that we should not be seeking to censor academic debate, indeed that is what Creawley and the UK PACE appologists are seeking to do with their harrasment narrative.
I defend Crawley's right as an academic to make fallacious arguments based on bad...
The people I know that have been on a 'Kur' or cure have had very different experiences based on their condition and reason for going and the time period seems also to vary from the three weeks mentioned above to several months, but I know no one with ME who has experienced a German Kur. The...
My ME has it's origins in a bout of glandular fever, but I often wonder what would have happened if I had had a period of convalesance rather than going back to work after several weeks, then being off for several weeks more and so on and so on. I will never know the answer but wonder if my...
It is easy to mix the two issues as both are being actively discussed in new threads. The LP trial was Prof Crawley's SMILE study that claims to demonstrate that the Lightening Process was effective in combination with specialist medical care. This has a big question mark over the methodology...
Thinking back to when I was still working as a clinican (Speech & Language Therapist) seeking to improve referrals from specific locations the service already at least theoretically covered, we provided information and training to the staff in those locations, but only offered assessments to...
Playing devil's advocate you could argue that this was an attempt to evaluate how effective the current referral system was for children with CFS/ME in this catchment area, however this evaluation was undertaken by doing something new, considering all children with low school attendance for...
Before Freud moved on to Psychoanalasis his critique of the then neuropsychological theoretical model making in his book 'On Aphasia' displayed an intellectual rigour and raised points that twenty first century neurologists and neuropsychologists have still failed to fully address.
Ironically...
I have messaged David and he is following this up, though it seems that the DISQUS comment facility on the Virology Blog is deleting as spam any comments with a weblink and longer comments.
Robert McMullan has also reposted his comment without any hyperlinks in this thread on the Virology Blog...
David as ever raises a lot of vital questions that need answering, in this case by the Science Media Centre, though as ever it will be a great surprise if they actually attempt to answer any of those that were asked. It may be they will answer a different question and then say they have answered...
I have had problems with comments on the Virology Blog being deleted as spam, and David suggested breaking this one up, so here it is as a single comment that hopefully is easier to read than in the three parts that appear there:
Thank you For posting this video link, I have just watched the first part of the video so far, and will need to watch it again to process it, but it is very interesting and very clear.
I do not have classic POTs as I do not in the very short term have any noticeable problems standing upright within the constraints of my current ME symptoms, other than when my ME is more marked requiring a stick for balance.
However, I am wondering if being upright, either standing or sitting...
Although all my symptoms vary over time I don't think I have fully lost any symptoms.
I do seem to get tooth abscesses in periods of more marked relapse, though I have not had one (fingers crossed) for several years. The first abscess I have had was very painful and occurred within a week of...
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