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I agree that this difficult issue needs to be broached quite early in the course of an individual's ME, and returned to later as it can be difficult for people to hear it and to take it in. It took me some twenty years years of this condition to truly take on board that any improvement is...

I think this mistaken belief arises if you look at short periods of time, a couple of months or so. I did find some years ago when introduced to this form of 'pacing' over a couple of months that I was able to increase my average daily total activity time. This was when I was varying between...

When I was introduced to 'pacing' in these terms under a specialist ME/CFS service, I was was recording my activity levels. I did found initially that getting out of daily/weekly boom and bust cycles did allow a slight increase in my total activity levels which I could continue for a period, but...

Try a different browser. I am on an iPad and could not access it from Safari, but after several tries in different browsers did manage to access from Puffin.

I have not read the full article yet, but isn't she arguing in relation to ME/CFS, that while evidenced based medicine is the goal, that even if you accept there is lack of evidence, it wrong to use such lack of evidence to [uniquely] deny people [with ME/CFS] access to medical care. It would...

Within classical yoga the head stand is refered to as the queen of asanas and regarded as very beneficial for the brain. Though brain fog prevents me from retrieving any useful quotes from the 'Yoga Sutras of Patanjali', or is it just age [and the intervening yonks]?

Is it just me, but I am struggling to get thoughts of multiplication tables and logarithm tables out of my mind? How do 'inversion tables' work? How much support does the body have and is the 'inversion' a complete 180 degrees? Is the aim to reverse gravity on the skeleto-muscular structure or...

Me too.

Let's hope @dave30th 's previous comment elsewhere on 'circles' in relation to the BPS crew's culture of reviewing, citing and promoting each other's work is sufficient to discourage the setting up of any new circles. (Said with typical British prudery circling round the actual phrase used.)

Dr Thai's publications (see http://www.bristol.ac.uk/clinical-sciences/people/jade-b-thai/publications.html ) seem very eclectic, it may be that she is more interested in the techniques of brain imaging as much as answering specific questions in relation to particular clinical groups.

Of the other researchers involved Dr Simon Collin (see http://www.bristol.ac.uk/social-community-medicine/people/simon-m-collin/index.html ) has co authored a number of CFS articles with Prof Crawley.

I see CRICBristol are also involved in another ME/CFS study - Understanding the neural mechanism of fatigue and memory impairments in MS & CFS/ME, Dr Jade Thai (See http://www.bristol.ac.uk/cricbristol/research/ ), but I haven't yet found any further details of this study on the University...

@dave30th coud you ask them to time the appearance of the article so it coincides with your next crowd funding? It may help

I think several of the UK national papers have offices/staff in the US. Also they would be able to use an agency photographer based locally.

To state the obvious, 'feeling harassed' is not the same as 'being harassed'. Let's hope this journalist realises this before publishing, otherwise she/he may find her/himself becoming guilty of 'harassing' others in the cause of those merely 'feeling harassed' because they are unable to deal...

An important piece of work. Thank you for sharing it here.

Sounds like David is on good form.

I suspect that virtually no specialist services have any of this data. Certainly when I attended the Sheffield service some years ago there were no objective measures of my functioning taken at all, and I think, beyond the initial assessment, no attempt to measure outcomes by subjective...

In relation to ME how do we define best practice? In the UK what NICE guidelines currently set out as best practice, what the specialist ME/CFS services provide, what GPs try to do and what patients would consider as best practice are all likely to be radically different to each other (except...

Here patients are being blamed for what is essentially doctor related issues that result in over prescription of antibiotics, in turn thought to be a factor in developing antibiotic resistant bacteria. There are two factors, a willingness to blame patients and doctors' action causing harm. Are...