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To play Devil's Advocate it is perhaps less clear cut in community provision, when evaluating new service provision, what is service evaluation and what is research. When working in the NHS we would at times provide trial service provision in new venues, either Social Service or Education. This...

To me it seems particularly worrying the School Absence study completely bypassed any ethical aproval process. This was research with a pre specified hypothesis that a significant percentage of school non-attenders had undiagnosed 'CFS'. This was tested by the schools involved inviting all non...

Here it seems Prof Crawley used a letter saying the use of a set of questionnaires relating to an ongoing service evaluation did not require ethical approval in relation to other subsequent projects. She used this single letter repeatedly with different studies and projects as a justification...

David ( @dave30th ) says "The journalist—one of the many BFFs of the Science Media Centre among the UK press corps", which suggests he believes the journalist to be responding to encouragement from a member of the British BPS crew. It does seem that there has been a significant tendency in the...

Obviously we do not yet know the publication involved or any content, however, if the articles goes ahead as the journalist's questions to @dave30th seem to suggest, would it be worth starting to develop a response strategy? Hopefully such an article will be another self inflicted shot in the...

Looking at the website I am still not sure we have that much more information to adequately evaluate what they offer than when the crowd funding was discussed in the thread that @Sly Saint links to above. We said before it was an interesting idea, it still is; we also asked why it does not...

Doing a search for 'Crawley' on the the HRA research summaries page (see https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/?query=Crawley&research_type=&rec_opinion=&date_from=&date_to= ), though MAGENTA and FITNET-NHS appear, none of the studies...

It may be a useful exercise to go through the HRA's research summaries relating to ME, ME/CFS, etc by searching on their Research Summaries page (see https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/ ), I found 61 summaries for CFS and 58 for...

Have just got round to looking at the Health Research Authority's website (see https://www.hra.nhs.uk ). On their section on their governance the say: The Board Members are Dr Allison Jeynes-Ellis, Dr Janet Messer, Graham Clarke, Ian Cook, Juliet Tizzard, Karen Williams, Orof Deirdre Kelly...

Given that there is some research support for gentle exercise helping Fibromyalgia (disclaimer, I have not looked at this research so can not be certain that it is any better than the appalling GET research in ME) it is possible that the gentle exercise induced by such a device is helpful for...

I am not sure that there is any logical reason why passively induced activity in the body should effect ME or Fibro any differently to consciously initiated voluntary movement. If the physically activity is of sufficient duration and intensity to trigger such as PEM then presumably it will do...

From the Health Rising article linked to above here is their explanation of what a 'blood flow enhancer' is: It seems to be based on the idea that physical stimulation to the sole of the feet triggers a reflex response in the calf muscles that acts like a pump 'enhancing' blood flow.

I too commend @Action for M.E. 's participation here, and their taking off line the Tool Kit pending a rewrite taking into account @Trish 's valuable letter and issues raised by others. Today I am struggling to get my head arround the issues under discussion, but do value we are able to have...

Thank you @ladycatlover, I had not read the briefing though I was aware of it. So it seems this was the main basis of Brine's statement, over and above him having seen Unrest.

With our current government's incompetence it is probably better not to expect them to anticipate anything. I have no idea whether Brine would have been briefed by a long standing civil servant in the Dept of Health, someone recently brought into the Dept of Health by the current government to...

It seems to be part of Government policy/practice when commenting on any issue to try to convey that the Government fully understands the issues and constructive action is being undertaken. [added - To do that in these circumstances they obviously were scraping the bottom of the barrel.]...

Presumably Steve Brine's endorsement of the RCGP training package was not based on any first hand knowledge. The statement would either be based on someone else's briefing or have been written for him. Is there anything to be gained from asking whose views his statement represents? Would the...

Just did a search for Chronic Fatigue Syndrome in Apple's App Store and came up with the following: Chronic Fatigue Syndrome Diary - cellHigh £4.99 Free ME/CFS Meditations from Chronic Fatigue ME & - Aluna Moon Publishing £13.99 Pain Diary & Community CatchMyPain Pro - Sanovation Ag £6.99...

It will be interesting to see the full paper when it becomes available, as I am very unclear what to understand from the abstract. Is anyone aware of the three existing 'smart phone apps relating to symptom management'? I am perhaps, unsurprisingly given the disastrous reputation of the...

This would seem difficult to address in relation to ME/CFS as patients are likely to be exposed to treatments that are ineffective or even harmful. The clearest cut example is GET, where adherence to the treatment is likely to be harmful, so logically the course of action demonstrating the most...