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I assumed the authors intended the readers to make that inference given in the introduction they refer to the suggestion that the persistent fatigue following interferon has associated cognitive problems. Unfortunately they do not follow up on this or even demonstrate they understand the...

The SMC briefing on this paper has gone on line this morning, though dated last Saturday, have not read it yet. http://www.sciencemediacentre.org/the-biology-of-chronic-fatigue/ The title alone seems to go well beyond what one can reasonably conclude from the research.

I interpreted this as a quote from the authors, rather than the view of the MEA, though that was not made clear making it read like a ringing endorsement of this study. I would have been much happier if they had made it clear that it was a quote and rather gave a cautious response given the...

Given the study has some 19 authors ( https://www.sciencedirect.com/science/article/pii/S0306453018301963?via%3Dihub ), why are conflicts of interest only love stead for seven? What about the other twelve? Here are the institutions the authors represent:

The SMC does not seem to have put anything onto their website on this study so far: http://www.sciencemediacentre.org/?s=Cfs&cat= Perhaps King's has borrowed the SMC mailing list and the press are just grateful to have something that is not Brexit related, but superficially at least a positive...

It does seem that the press coverage is over hyping the study and I worry that quotes I saw from Charles Shepherd come across as over positive about the authors' interpretations of their results. It is good that the press are taking seriously a biomedical study of ME and it does suggest that the...

It is so difficult to evaluate these observations based on just clinic experience. Do they reflect chance that a particular physician just happens to see more with a specific feature than not, do they reflect the physicians unintentional/unconscious expectations or do they reflect the clinical...

I don't think this is enough to explain the dramatic increase in asthma and allergies in recent years. I suspect any increase in allergies or asthma due to better health care impacting the mechanisms of evolution would take a number of generations not just a few decades. Also it is an over...

I too am the youngest, and spent most of my childhood outdoors in the sixties and early seventies. No family history of allergies, etc, though I had one uncle with mild asthma and have one neice with it too. Since the onset of ME I have developed worsening food intolerances (gluten, caffeine...

@Andy, thank you for posting. An excellent blog article.

Thank you, useful points. Also helpful to have comments on the terminology. For me it seems useful to have an fairly exhaustive list of what pacing might and might not be doing, ideally worded in fairly neutral terms (which I have not achieved). Pacing is a set of diverse self help strategies...

I agree we have little objective evidence on what pacing is achieving, that we can not present objective facts only subjective views and anecdotal reports, but if we are wanting to say to NICE that there is strong patient support for pacing, do we need to have some clarity about what we are...

@NelliePledge, I had made a deliberate decision not to number the list in the comment above as I felt it incomplete and that it could possibly be better organised, however here is a version with numbers: Which if any of the following would we regard as [describing our experience]? 1. Stop...

The need to set goals for increased activity is fundamental to the psyche of many if not most health and care workers. (I say that as a former health care worker, albeit one who worked predominantly with irreversible and degenerative conditions.) Pacing was sold to me as a means of increasing...

I have been pondering how this relates to ME; certainly we have rules written by an elite imposed on patients against the evidence of their own experience, with those patients (and/or parents/guardians in the case of children) being blamed when this fails to achieve the desired results. Further...

This is potentially interesting for us as people do not have problems with the idea of dementia (a symptom based diagnosis) even though there are a wide range of underlying different biomedical deficits and causes. So why does this biomedical heterogeneity in relation to people with ME cause...

I agree it certainly seems profoundly unsatisfactory that Cochrane have acknowledged there are significant issues with this review such that a complete rewrite is necessary, but leave it still online in a format such that the casual reader can easily access the full article without being aware...

The Cochrane Exercise Review that the authors recently resubmitted, with the resubmission being rejected is still online, see https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub7/full?highlightAbstract=withdrawn|cfs|exercise|exercis However interestingly the word 'withdrawn'...

PR must be a major factor. If you asked people what for example MND or MS are, I suspect a significantly larger number would come up with some form of meaningful answer, perhaps even mention a famous sufferer, in comparison to people answering the same question on ME. I suspect many of my...

Not with it now, but will try tomorrow to compile a list of education and health authorities involved, to know which local papers and MPs are relevant.