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  1. BruceInOz

    FoI request regarding an 'activist list' in the Sunday Times Magazine in May 2013

    I believe someone once sent him the lyrics of the last verse of Bob Dylan's Master's of War which he interpreted as a personal death threat.
  2. BruceInOz

    Finland: Draft report on planned guidelines based on Fink's functional disorders

    While skimming through the titles of new posts, I misread this title as "Daft report ...". Maybe that is actually more appropriate?
  3. BruceInOz

    Anyone know the studies claiming to show if ME patients believe won’t get better they will not?

    It's all just the usual misattributed correlation/causation bullshit isn't it? I've always wanted to do a study of people reporting to emergency complaining of leg pain and ask if they believe their leg is broken. I'm sure I would find a correlation with inability to walk unaided at one month...
  4. BruceInOz

    David Tuller's new crowdfunding campaign (April 1, 2018)

    I played around with the map on the donor wall at a time when the total number of donors was 901 and added up the number of donors from each state. That gave 188 US donors so 713 or 79% are from outside the US, I'm guessing largely from the UK. I guess that suggests that the negative impact of...
  5. BruceInOz

    [POLL] Is ME primarily an environmental illness?

    @Milo why don't you put the word "primarily" in the thread title and poll question? I know it's there in your first post, but it seems central to the question you are asking and some may vote before reading that post.
  6. BruceInOz

    Publisher Gets Carte Blanche to Seize New Sci-Hub Domains

    Great short blog about the issues around the morality of using scihub linked to at the bottom of the page above: http://bitesizebio.com/28276/five-truths-science-publishing-science-free/
  7. BruceInOz

    It’s not your fitness tracker that is wrong – it’s you

    Maurits Cornelis Escher https://en.m.wikipedia.org/wiki/M._C._Escher
  8. BruceInOz

    The biopsychosocial model

    I don't think a model is necessary for it to be science though. Careful empirical observation is the stuff that should inform the development of a model or hypothesis and is part of the scientific process. So is an untested hypothesis since it informs what evidence should be collected to confirm...
  9. BruceInOz

    Michael Sharpe skewered by @JohntheJack on Twitter

    "Patient rated outcomes were used because that is how the illness is defined we have chosen to define the illness and it suits our purposes better. Truly objective outcomes don't exist undoubtedly exist but we couldn't be bothered trying to find any since it suits our purposes better.
  10. BruceInOz

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Evidence for an autoimmune disease

    Yes. Although that answer is only based on what would have been the norm in respected physics journals 20 years ago, so in reality I've no idea. Seven days is a very short time, but I would imagine not impossible. Maybe those asked to review it didn't have anything better to do that week and...
  11. BruceInOz

    Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection

    I'd have thought a comparison group of patients with orthostatic intolerance but NOT ME would have been essential. Not everyone with ME has OI.
  12. BruceInOz

    Australia - Mason Foundation to investigate viability of ME/CFS Biobank - update - funding awarded for biobank

    I spoke to a neuroscientist at the University of Tasmania after David Tuller's talk there who is planning research that would utilise this biobank if it gets off the ground.
  13. BruceInOz

    Michael Sharpe skewered by @JohntheJack on Twitter

    I've lost track. Do we know whether or not the PACE authors declared COI to the MRC?
  14. BruceInOz

    Systemic exertion intolerance disease diagnostic criteria applied on an adolescent chronic fatigue syndrome cohort - Wyller et al (2018)

    Regarding their detection of PEM, the paper says This CFS symptom inventory seems to be the only place PEM could have been measured. Reference [20] is titled Psychometric properties of the CDC Symptom Inventory for assessment of Chronic Fatigue Syndrome and is about validating a questionnaire...
  15. BruceInOz

    Healthwise to "retire the GET/CBT topics" from medical content

    Well done @Webdog ! Sometimes persistence does pay off.
  16. BruceInOz

    David Tuller lecture: CFS (aka ME) - Challenging the accepted dogma through research journalism

    The presentation was in a lecture room at the University of Tasmania. They have a virtually automated recording system set up to make it easy for lectures to be watched later by students who may even be at different campuses. (My son attends UTas and I know they do it this way in other...
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