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This is one study on anxiety in POTS by Dr Raj's wife-not sure if the same one mentioned in the post above by @Hutan https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2758320/?tool=pubmed

The Meniere's Society gives descriptions of different types of causes: https://www.menieres.org.uk/

Jenny Spotila talks about METS in her blog Occupy ME in her series of her experiences of the 2 day CPET and trying to pace in the light of the results. See https://occupyme.net/exercise-testing-and-results/ METS comes up in the last post of the series:Meeting METS

All 3 groups participated in the intervention, there was no non-intervention group. In the PACE trial, the SMC(no treatment) group mean scores on the 6MWD improved by 22m, to 348m from 326m at baseline. They say there no difference in age between controls and patient groups when the means are...

I met Stuart briefly at the Millions Missing in Glasgow in 2019, where the band also played a few songs. He is a kind and gentle person. He became an Open Medicine Foundation ME Ambassador in 2018 (don't know if he still is, he had to cancel Tour dates in 2022 because of a downturn.) There...

Earlier this year I was called for jury service. I moved here after leaving work following a year on sick leave. I've never seen a GP since I've been here as I no longer needed 'Fit notes'. My only contact with the surgery has been the practice nurse for a new patient appointment & routine...

I seem to remember that Dr Lynette Hodges from NZ was looking at repeat CPETs with different time intervals.

The CCC does have a footnote that allows for a clinical diagnosis of those who fit all other criteria and have infectious onset, but don't have significant pain(or sleep disturbance). It is rarely clear whether that is taken into account in research papers, or whether that subset is...

So people who are more ill, with less social support, who had no mental health issues/ psychiatric diagnosis prior to covid, show up as more distressed after becoming ill, so we'll stick a personality dysfunction label on them.

Why is the section on activity management in the transcript accompanied by a cartoon of what appears to be someone doing star jumps?

Other thread on this podcast series: https://www.s4me.info/threads/me-chronic-illness-podcast-post-exertional-mayonnaise.33695/

I know it would be only be self-report evidence, but the most recent census in Scotland asked if you had a disability, and then ME was one of the options on the following drop down list.

Although it was a very small study, these researchers found on reviewing their data that patients could only reach the prescribed daily activity goals for the first 4-10 days, and subsequently exercise time dropped substantially...

@rvallee the PCC SF 36 PF score is 49.9, I think you've quoted the Physical role score below

I'd never had one until after my 2017 relapse, not sure exactly when it appeared but started trying to treat it in 2019. At first I thought it was a corn, but after using corn plasters for a bit realised it looked more like finger warts I'd had in my teens. I saw a foot care practitioner once...

Interventions for balance (which happen for patients with stroke, head injury, other neuro, frail elderly for falls prevention etc.) would not be focused on increasing duration of aerobic activity. Activities to work on balance, usually start with more stable positions and the level of support...

Given the correspondence addresses of the authors and one author's name this looks like it may be the same team...

this isn't a transcript of the video, but a blog he wrote when the pre-print came out https://thesciencebit.net/2023/01/10/eight-or-more-logical-fallacies-in-that-paper-bemoaning-the-new-nice-guideline-for-me-cfs/

Is Dr Griffin getting hung up on the Pace Trial authors claims that CBT & GET were more effective than the Adaptive Pacing Arm(APT) of the trial, because some patients filled in questionnaires differently. I had a skim through the APT participants manual the other day, and if someone had...

Thread on a previous paper from Leicester University. Lead author appears to have several other papers- will try and post later- need to get back to the Tour de France now https://www.s4me.info/threads/restricted-spatial-windows-of-visibility-in-me-2018-hutchinson-et-al.2006/