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I seem to remember that Leicester University published a couple of interesting papers of visual issues in ME a few years ago.

I was puzzling over this predicted 'percentage of metres' walked too. I think it may have come from an equation in the paper in reference no.27 (link below) I've only skim read the paper but I think the original authors rejected the equation as it didn't account for all the variations between...

We have this thread: https://www.s4me.info/threads/the-feasibility-and-impact-of-practising-online-forest-bathing-to-improve-anxiety-rumination-social-connection-and-long-covid-symptoms-2022-mcewan.30633/ I have a vague memory of Robson Green in a recent BBC series of him spending time in...

Good to see sensible comments in the last paragraph of the discussion about the problems of interpreting scores on anxiety and depression questionnaires without considering that patients are actually describing POTs symptoms.

Re BBC R4's News Quiz mentioned earlier in the thread, sufficient complaints to the Feedback programme on the same station sometimes forces someone from further up the hierarchy to respond.

The Future Pensions Service has been in major overload because of the deadline for making voluntary NI payments for pre-2016 years which was meant to be 31st March this year and has now been extended to 31st July. (Blame Martin Lewis for flagging this up) See below...

I got stuck as it asks whether you have a close relative or friend with ME, which I do, so said yes. Then asks if you have permission to fill it in for them which wasn't what I was doing and as there was no way to change my response, I gave up.

Interesting looking at the 6MWT scores and remembering the post treatment scores in the PACE trial which were a group with similar age profile. This study's groups H:603m, C-S:624, C-R:689, COM (comparison group):719m PACE trial Baseline CBT: 333m, APT:314m, SMC:326m, GET:312m 52...

I've been using a polar watch & separate HR monitor chest strap for about 5 years. I fitted POTS criteria in 2018 and because of that was never able to use HR monitoring with suggested limits, as I'd never have been able to do anything that involved sitting or standing. I just used to observe...

This paper does have a list of some commonly used monitors by pwME: https://www.s4me.info/threads/an-international-survey-of-experiences-and-attitudes-towards-pacing-using-a-heart-rate-monitor-for-people-with-me-cfs-2023-clague-baker-et-al.32434/ Have you thought about buying an older model on...

The Institute for Optimum Nutrition was founded by Patrick Holford: https://en.wikipedia.org/wiki/Patrick_Holford

Yes, email is dated yesterday evening, but didn't check my mail until this morning.

Just heard today that they were able to extract my DNA from my sample. It was posted 17th Oct, it appeared to have gone astray, but turned up end of January. :)

Link to a 2019 paper by the same department which explains why they used rabbits and describes the tilting process. Adrenergic Autoantibody‐Induced Postural Tachycardia Syndrome in Rabbits https://www.ahajournals.org/doi/10.1161/JAHA.119.013006

MEactionScotland have been involved in this, see tweet in second post of thread below: https://www.s4me.info/threads/meaction-scotland-stakeholder-review-of-nice-2021-me-cfs-guideline-to-prepare-for-scottish-implementation-deadline-1-march-2022.24741/ But that was a year ago and this is...

Stuart Murdoch, musician from the group Belle and Sebastian, is sharing his 'Tracks of my Years' on the Ken Bruce show on BBC radio 2 through this week. Link to the compilation programme, 57mins, available for 26 days from date of posting. https://www.bbc.co.uk/sounds/play/m001hmnl He talks...

The term 'bonked' for exhaustion is familiar to me in the UK from the cycling world, although my memory was that 'hitting the bonk' was more associated with not taking in sufficient nutrition and fluid on long rides. It has the effect of wiping you out, but taking on fluids and snacks you can...

Over-50s at work: 'You feel your usefulness has passed' https://www.bbc.co.uk/news/business-64441775 A survey by the CMI (Chartered Management Institute) found only 42% of over 1000 managers were open "to a large extent" to hiring people aged between 50 and 64. The phone in below was on...

It seems my spit kit has either arrived 3 months late or been found somewhere. :) Just need to wait & see if they can extract DNA from it now.

Thanks, Andy. As still recovering from Christmas family visit travel I hadn't got round to contacting them, but I've had an email this morning from DecodeME saying they hadn't received a sample from me. I've replied explaining the above.