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  1. MarcNotMark

    Jen Brea's #UnrestPBS twitter chat (numerous guests)

    This should take you there: https://twitter.com/hashtag/unrestpbs?f=tweets&vertical=default&src=hash (Edited link)
  2. MarcNotMark

    Nature: A reboot for chronic fatigue syndrome research

    I don't want to question Fluge or his research but the negative outcome of the RituxiNOT trials might actually be helpful in lowering this placebo effect a bit.
  3. MarcNotMark

    Films

    One of my favourites of the past is Memento with Guy Pearce playing a man without a short term memory (anybody? :rolleyes:). I recognised the "making notes as a substitute of the memory" :D http://www.imdb.com/title/tt0209144/?ref_=nv_sr_1 Here's the trailer:
  4. MarcNotMark

    News from Dysautonomia International

    I just made a screenshot of the how to ;) For a video, better pause it first of course.
  5. MarcNotMark

    Total and 'Active' Serum B12

    @Scarecrow I had my MMA tested at the European Laboratory Of Nutrients in the Netherlands: http://www.europeanlaboratory.nl Here's the pricelist, it's €50 for Methylmalonic acid: http://www.europeanlaboratory.nl/documents/en/pricelist_en.pdf
  6. MarcNotMark

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    Not all threads have to be about Esther Crawley.
  7. MarcNotMark

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    I meant an anagram thread of course :emoji_innocent:
  8. MarcNotMark

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    Screw ye lather (I see a new thread coming :))
  9. MarcNotMark

    Using PCs versus laptops when you're mostly in or on your bed

    Maybe not exactly what you're looking for price wise and, ok, it's not for in bed, but you can still lie down while doing some computer work :emoji_nerd: .
  10. MarcNotMark

    Unrest - reviews and general articles

    Article in one of the main Dutch national newspapers "De Volkskrant" about unrest: Chronisch vermoeidheidssyndroom ME is geen 'yuppiegriep' (CFS isn't yuppy-flu) The author quotes Jennifer Brea and explains why CBT, GET and PACE are bad so it's a positive article for uninformed readers...
  11. MarcNotMark

    Ronnie Schuurbiers Science for ME

    I knew I saw this before, more info here: https://www.s4me.info/index.php?threads/useful-resources.397/#post-6223
  12. MarcNotMark

    Jane Colby Tweet Forward ME

    There won't be an official trial by Galapagos / Gilead, these are the official indications: http://www.glpg.com/clinical-pipelines The idea is that it might be prescribed for de Meirleir's patients if (unofficial) tests are successful. Best case scenario for market launch is end of 2019.
  13. MarcNotMark

    Using PCs versus laptops when you're mostly in or on your bed

    Did you look at a monitor ceiling mount? Combined with a wireless keyboard and mouse might be a good solution.
  14. MarcNotMark

    Useful gadgets that make life easier for MEcfs patients and carers

    The tax was presented as a compensation for the artists if someone would like to make a private copy of something they already bought, of course we all renamed it to "pirating tax" so that it feels better while downloading :devilish: IIRC Brein (association for the Protection of the Rights of...
  15. MarcNotMark

    Useful gadgets that make life easier for MEcfs patients and carers

    Eh, it's now officially illegal in the Netherlands too, since 2014: https://tweakers.net/reviews/3499/wat-betekent-het-downloadverbod.html I think we still pay this tax though so that's a bit weird :thumbsdown:
  16. MarcNotMark

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I've never saw her talk before, thank you very much, my life will never be the same again :eek::eek::eek:;)
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