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:laugh::thumbup: It shows how little credit these people give us. It also says a lot about them...

Yes, in the beginning, pwME do activities, not expecting negative repercussions. With experience, we learn that exertion may cause post exertional symptom increases. However, there are still activities of daily living that pwME have to do, or choose to do, despite exertion causing symptom...

Thank you @Hutan, for the "NHS doctors with Long Covid article. Their descriptions and experiences of medical and institutional mistreatment are of course all very familiar to me, and doubtless millions of pwME. For some of these doctors, these experiences will be new. An unfortunate way to...

These authors said pwME"...perceive symptoms as threatening...", well, it wouldn't be smart to ignore the threat of imminent fainting if a pwME has POTS, and has been upright long enough that they start to feel faint. Common sense, and self preservation have to come into the picture somewhere...

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I recently heard people in the media talking about being tired all the time. These are supposedly healthy people who work full time, and have busy lives outside of work. They, and countless others with similar lifestyles cannot be expected to understand ME at all if it's described as chronic...

Thank you very much to these authors for this research, that may implicate EBV in ME and LC. Those who are aware of the history of ME will know that EBV as a culprit in acquiring this disease has been viewed before. Medicine is gradually (too gradually) learning that there is more to EBV...

The pharmaceutical industry backs up the medical industry, information-wise re drugs. If the pharma industry says it's good, or fine or some such positive message, then it appears OK to provide prescriptions for drugs that might have received bad press at some point. I don't know what it's...

Thanks very much @Spartacus for your reply! All I've read in studies and news articles is that pwasthma fare far worse with COVID, so it's good to know this isn't necessarily the case. :)

Thanks very much @Ash for your reply! Hope you are doing better after your COVID infections. I'm not sure where we're at here (Canada), with returning to precautions or not. After the early precautions, public health officials have just handed it over to all individuals to do what they want in...

I see less and less people wearing masks here. I wear a mask in stores and elsewhere indoors. COVID infections are on the rise again, with outbreaks in hospitals etc. It's of course, not a done deal. I haven't had anyone yell at me about wearing a mask, but I sometimes get the vibe: "What's...

Excellent description. There is a lot packed into this very concentrated article. I'd like to hand this out to people. Society has such a narrow understanding of disability. Yes! People see it as permanent. And yes, they think you should accept disability, or at least be cheerful about it, or...

The dismissal and disdain of society's elders is plain to see in COVID literature that minimizes the general risk, because it's mainly people 70 and older at most risk ("so who cares"). Early in the pandemic we met a fellow with this attitude: who cares if senior citizens, die of COVID. Odd...

Yep.

Thank you for this @Jaybee00. Always amazing how some medical personnel can ignore scientific evidence in favour of weak theories.

You are absolutely right. ETA: I was more just thinking about individual donations from pwME. I've never asked others to donate; I don't want to be yelled at, scorned, or dismissed. Been there, and try to avoid it.

@bobbler, you are right that many pwME new to this disease don't know how bad it can get. There are a number of reasons for this including: doctors who tell their ME patients they will fully recover, quacks who say they can cure ME or CFS, support group info that skips over the fact some pwME...

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There are other groups for example, MS societies who seem to raise quite a bit of money for research through private donations. There are of course ME organizations that fund raise, but it's clearly not enough to generate new findings. There seem to be a number of situations blocking...

Interesting, and of course concerning. Public health officials in Canada, and probably elsewhere, have been saying how a combo of vaccination, plus infection provides extra protection. This advice now seems questionable.