Thank you @Mark Vink for this.
And, where is this LONG list of supposed organic illnesses, later found to be psychological? Not a very long list in the article.
I've never heard of drapetomania, but why in the world would this be considered an illness of any type, or an inexplicable action...
@rvallee
Thank you for your post, including points about professional responsibility. That is certainly the idea, and the ideal.
However, in my own experience, let alone that of many others, it's not the practice. Medical errors of significance and harm, can often be ignored. There is no...
Where and what is the "evidence of previous incidents"? Was there a full police investigation, charges, court case, and result? Seems evidence for the BPS Plaintiffs can be pretty thin indeed.
So 250,000 people in the UK with "chronic fatigue". Interesting that instead of lumping all these individuals in with the many, many others with cf, which is often the aim of the BPS campaigners: to blur the boundaries, and make ME/CFS disappear, this community has been distinguished from all...
I've had positive experiences with steroids. The main thing was a noteable reduction in muscle pain. It was wonderful. No other symptoms improved, but I might have forgotten, as this was many years ago.
What can I say here....:banghead::banghead::banghead:
Not again! Or still...?
"Negative perfectionism". Yes, deny pwLC and pwME have any debilitating symptoms, then call this group negative perfectionists. Having too high a standard to get back into the mainstream.
They don't listen, or care...
What a remarkable person. Her work and determination have helped save many, many lives.
On the subject of academia, which we have both been involved in, my other half and I were just talking about university research. Hopefully not all of it is repetition, repetition, or frittering away...
"No underlying condition found...", however...causes could be put further up on the list. Some don't read past the heading and a couple sentences, as everyone knows.
I wondered too about your teddy bear, @Mithriel
It's clear now. And, an excellent way to present ME, I think. The juxtaposition of a very familiar, well-loved, symbol of softness, warmth, happiness, care, and safety, contrasted with the unknown, unfamiliar, cruel, devastating, mistreated...
Thank you @adambeyoncelowe
I completely agree. I appreciate Chivers tackling this subject. We are in the thick of this, many of us for decades. We, each in our own ways are subject experts. For an outsider to take up this topic, research, write and publish it is a big undertaking. To do so in...
IMO the Other Side has not accepted correction from our community for a long time. If ever.
After all how could the lowly, crazy patients know what ails them? ;)
One size fits all. It appears the Other Side still wants to lump in conditions like IBS, Fibromyalgia, and who know what else with ME, which will dilute and obscure the picture of this distinct disease. Something that seems to be an aim of this group.
Exactly.
We know the Oxford criteria are so vague, many people, including healthy people could be included in the CF category.
For example, a very fit, healthy person who had fatigue for well over 6 months. Their hemoglobin was fine. Their ferritin was very significantly low. Despite this...
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