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  1. Marky

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I see. Should be deemed a conflict of interest in my opinion
  2. Marky

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I dont care about the article too much, but it infuriates me that while patients are suffering without a voice or treatment around the world, Sharpe has the audacity to pose in the fucking park as a victim for "abuse" when that "abuse" is thousands thinking his research is complete trash, and...
  3. Marky

    CD24 expression and B cell maturation shows a novel link with energy metabolism: potential implications for patients with ME/CFS, 2018, Mensah et al

    Thanks for sharing, that was a bit easier to understand! So they concluded that the abnormal expression might be due to the patient b cells trying to function normally? Considering Ritux didnt show significant effect in phase 3, some sort of downstream adaptation makes some sense i guess. Man...
  4. Marky

    CD24 expression and B cell maturation shows a novel link with energy metabolism: potential implications for patients with ME/CFS, 2018, Mensah et al

    I struggled to understand what they found out in this paper (in layman`s terms), anyone help?:D
  5. Marky

    Using the internet to cope with chronic fatigue syndrome/myalgic encephalomyelitis in adolescence: a qualitative study (Brigden et al., 2018)

    To be fair this is exactly the kind of absurd spin they usually do when referencing articles (which few read), i`d say it remains to be seen:P
  6. Marky

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    I came into this thread intrigued about the findings, even though questionnaires are terrible for assessing physical function alone. After reading the author`s comments I`m very confident that there is nothing here.
  7. Marky

    Ketogenic diet

    How r u doing @leokitten? Curious to try this:)
  8. Marky

    Ron Davis: Grant award: Molecular and single-cell immunology in ME/CFS

    This is huge! Stoked to see its about t-cells, i had some double positive expression of something on mine which some hospital found out a bit randomly when testing for other things. They didnt know what it meant
  9. Marky

    Patentscope: Prevention and/or treatment of chronic fatigue syndrome

    Ah niice, was looking for a thread on this. After reading the patent i was kinda bamboozled, will i improve by eating rhubarb and secreting kidney stones:thumbup: A few people i know say they have improved, one even got out of a dark room some years ago. Dont know the status now though. I wont...
  10. Marky

    13th Invest in ME Research International ME Conference - 1st June 2018

    The idea of a metabolic trap is intriguing, is there any illnesses were this is happening?
  11. Marky

    News from Scandinavia

    Love it:thumbup:. I was also being filmed for the documentary, guess im gonna go make a facebook status and complain like an entitled ":whistle:". No, cause i don`t care. The documentary was AMAZING. By far the best coverage on ME/CFS ive ever seen. Very sombering, but also very hopeful. I...
  12. Marky

    Janet Dafoe - The Whitney Plea

    I too find it very weird and too theatrical.. It would probably only solidify some existing misconceptions about us. Sending videos to Francis is a good idea, but this is likely the wrong choice of content. Appreciate the effort tho!
  13. Marky

    David Tuller Trial By Error: My Visits with Alem Matthees

    An ambivalent read.. Great article, but devastating content. His relapse illustrates the insidious nature of this disease.. At least it sounds like his spirit is strong. Admittedly its always scary to hear when patients become so ill that they need to resort to sign language, knowing that not...
  14. Marky

    Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

    No wonder some people think were crazy:geek:
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