Search results

Oh dear, it gets worse and worse. So it's a pyramid selling scheme like LP. I hope advertising standards will be able to put a stop to it.

The author seems to be a pharmacist who works in integrative medicine using herbs, nutrients and lifestyle advice. The article is long and rambling and I have only skimmed bits of it. I can't see it getting published in a mainstream journal, maybe an alt med one.

They specify that they were assessing CF not CFS, using the Chalder scale and including anyone who scored 4 or more on the 11 point scale.

I have no idea whether that makes sense physiologically. It doesn't make sense to me experientially.

Sounds like a worthwhile project for people with ALS. It's good to see there are over 100 clinicians and scientists participating in reviewing possible treatments. I had a friend with ALS and it's a truly terrible disease. For ME/CFS there isn't enough clinical trial research to be worth...

I've started a thread to discuss concern about Dr Strain's opinions. https://www.s4me.info/threads/can-we-do-anything-about-dr-david-strain-medical-advisor-to-action-for-me-in-the-uk.37027/

The reference for diagnosing chronic fatigue is the Chalder Fatigue Questionnaire.

Their conclusions about cause an effect in the second part I have highlighted makes no sense. Becoming sick will increase someone's stress and reduce 'self efficacy', not the other way around. The odds ratios seem pretty small and they don't give any data on scores on each questionnaire in each...

‘If Exercise Could Cure This, I Would Have Been Cured So Quickly’ Striving for fitness is usually healing. But for most people with long COVID, it can be toxic. By Katherine J. Wu The rest is paywalled. Does anyone have a free access link?

That seems to be an empty spreadsheet with just a heading.

That is good news. Now they need to include a clear explanation in the next eplsode that it's a scam, and an apology to all who were misled. And they need to avoid in future any similar scams.

OK, so it's a badly written abstract that caused my confusion and rejection out of hand of this research. But I don't think there's evidence that learning to handle stress is the solution to ME/CFS. It may help some people to cope better, but it's not going to cure what I have. Even in my least...

I think the new Isle of Man service was set up with patient input and ME Association approves of it, so presumably it's pacing.

That is disgraceful advice. It's not NICE compliant. NICE does not encourage people to push themselves a bit - that's GET. Most pwME can't 'exercise a bit but not to extremes'. He hasn't a clue.

I don't have access to the full paper. The abstract is very confusing.What do they mean by highPEM and lowPEM patients? And still using Fukuda criteria... If by high PEM they mean people who actually experience PEM, then only half the participants have ME/CFS by current research definitions. If...

You can get different angles. They are advertised as wedge pillows for people with acid reflux to use in bed, which is what I initially bought mine for. Now I use one all the time at night, and an extra one on top of it to raise my top half more during the day. They are a cheap option if you...

My sympathy to the doctors involved. The PPE situation in the UK was disastrous for many. For every doctor affected there are likely to be large multiples of others working in the NHS, particularly nurses who spent all day every day on the wards, equally affected. This could cost billions, and...

I like the Steve Topple article. It makes lots of very good points which I'm too exhausted to parapharase correctly. Do read it.

Can you explain what you mean by fatigue/PEM? Are you talking about the immediate fatiguability during and after activity such as walking that slows you down, or are you talking about delayed PEM that includes significant increase in symptoms and reduction in function that usually lasts days or...

Moderator note: Please avoid questioning or speculating about an individual's diagnosis and other medical details.