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I find during the day lying on my back with a wedge cushion that creates a slope of about 30 degrees from horizontal from my hips upwards with my legs horizontal, plus a thinnish pillow for my head so my back is fully supported but I'm not completely horizontal is best. I do this on my bed, not...

Thread on their research section: Metrodora Foundation

I said: I think my sentence was ambiguous. We're probably on the same page here. I've just checked the Oxford definition Link to article. It described CFS as chronic disabling fatigue for at least 6 months. It lists various psychiatric disorders as exclusionary, but also says "Other...

I think that was true in the early stages of the pandemic when it was thought that it was a droplet transmitted infection. It's now established as airbourne, not just in droplets, so we need better quality masks that can filter out virus particles, not just cloth ones that catch bigger droplets...

I agree post-viral is not the only trigger of ME/CFS, as explained above. It's fine for any individual to say their ME/CFS is post-viral. The list of symptoms in table 2 has some overlaps with ME/CFS, but is not the same as any definition I know of ME/CFS. It includes more psychological...

I don't understand what you are saying here. Sean's statement that the psychosomatic paradigm has been the dominant one until recently is factually accurate in both clinical appoaches to treatment and in research funding in many countries until very recently. Certainly so in the UK, Australia...

Excellent lettter from MEAction UK to the BBC. Thank you @MBailey. And many thanks to Action for ME for taking action too. It's horrifying seeing the BBC being used to promote a scam perpetrated on seriously ill people. I hope the BBC issues an apology and withdraws the program from iplayer.

I think he shows here that he is talking about psychological stress, anxiety, depression, burnout and general pressures of life as causes of fatigue. As far as I recall neither of the articles on this thread mentions ME or even CFS. He's talking about chronic fatigue and doesn't recognise that...

The article conflates burn out and all sorts of fatigue. PEM is mentioned, but not explained. There's nothing about pwME being ill and any other symptoms, just about being fatigued and pacing is described as a way of planning your days so you can still achieve your goals. At least that's how it...

That doesn't make overtraining the cause of their ME/CFS necessarily. Many we hear about, for example, with Covid triggered ME/CFS mention that they were sports people, but that's to explain they were active healthy people before Long Covid, not that their athletic activities caused...

I wonder if that's really the case. My impression from some of the men I know is that they run to the doctor for every minor symptom and take sick leave for a cold, whereas the women I know, being accustomed to having to hide things like severe period pains and act well, only take to their beds...

Dragons Den is all about people who have made a lot of money in business and investment using some of that money to support new businesses to expand, and thereby making themselves shedloads more money. If this woman is selling bits of plastic with a multiple of ten mark up in price, of course...

Yes, according to the institute website, the institute has a research section. As far as I can see the foundation is what funds their research.

The Metrodora Institute is a clinic for 'neuroimmune disorders' and also does research. The have some women on their clinical staff. https://www.metrodora.co/

Some posts have been moved to: Acupuncture and other traditional Chinese medicine news and discussion thread

Consistently awful. I really don't see the point of meta analyses of multlple trials that take outcomes of trials at face value. They really only add value to the record if the reviewers dig deeper into the quality of the data they are collating. Not only the obvious things of blinding if...

They also seem to be not looking under the lid at what the CBT involves. Is it PACE style persuading people they aren't really sick and encouraging exercise, or is it supportive to help cope with illness and to help managing life changes to enable pacing? These are diametrically opposites, yet...

I saw the heading and felt immediately despairing. How dare they mess us about with this crap again after all these years? Edited to remove swearing.

I don't like that description of pacing. as 'carefully planning activities to avoid overexertion (PEM)'. PEM is not overexertion, it's a consequence of overexertion. And however carefully we plan, the key is symptom contingent pacing, not plan contingent pacing. Also we can't plan completely, as...