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Totally agree with you calling the improvements of Jeff and Jennifer spectacular. I myself have reported symptoms improving and going from severe to moderate ME. Yes I am happy with these results, but it is too early to call this outcome spectacular. I still have moderate ME and that is no walk...

Current stats show 18 out of 27.

Well said Sasha!

No comment. Not wasting any more energy on your negativity. I feel like crap too. All the time. We all do. But I wonder where all this negativity comes from. Must be because OMF is in some way more affiliated with "the other forum". This attitude is not helping anybody. Money may help though.

I think every ME patient should stand behind the OMF instead of criticizing their fundraising methods. We need to throw boatloads of money at professional and trustworthy organisations like OMF employing a large group of geniuses who are willing to to take on this monstrous illness. I have not...

Wow... We are talking about Ron Davis and many other highly respected researchers here. Sleazy marketing?? You think he'll be buying a nice new Mercedes from this?

Hard for me to understand this kind of reaction on an ME patients forum. Clearly OMF needs multi millions over the next years. Our governments sure are not going to pay for it. So if we don’t support OMF, who will? Or can you recommend another research group more worthy of receiving much needed...

Not all patients have limited funds. Some may even be loaded. (I’m not) But to be able to triple my donation sounds good to me. Furthermore if OMF is not on the right track than who is? I expect great things from this team.

Your donation supports: ME/CFS Collaborative Research Centers at Stanford University & Harvard University Cutting-edge, cost-efficient research Research focused on molecular and cellular pathways to get to the core problems Testing pre-approved FDA drugs using in-lab technologies Collaborative...

Indeed It looks like it’s not specified on their website why they are setting a 525.000 dollar goal now. see below. But surely a lot of funding is needed to support this group. wanted to donate last week. Glad I waited because now its tripled! Too bad donations are not tax deductible if...

I emailed them. their answer comes down to: there is currently no taskforce available to review the guidelines.

https://www.omf.ngo/?form=TripleTuesdayOMF Triple Tuesday OMF begins today! What if the entire world came together to give? Imagine what we could do! We are thrilled to announce that in response to the new opportunities and hope from the Community Symposium, two anonymous donors have...

So the Dutch College of General Practitioners removed all guidelines. Leaving us without guidelines, but fear not, we also have the "Dutch Federation of Medical Specialists" and they have their own guidelines database, mostly about what no to do and why not. On their site the desired and...

No replacement as far as I can see. Searched their database in every possible way. Thats ok for me, I’d rather have my GP tell me he has no clue what to do instead of referring me to the BPS mafia. Edit: Forget to answer your first question Esther: They have made no official statement about...

From their website: Het Nederlands Huisartsen Genootschap (The Dutch College of General Practitioners) is the scientific society of Dutch general practitioners (GPs) with the mission to improve and to support evidence-based general practice. Over 95% of the GPs in the Netherlands (appr. 11,000)...

Quick and dirty (google) translation from: http://mecvs.nl/nieuws/richtlijn-cvs-uit-2013-geschrapt/ Following the recent Dutch Health Council opinion on ME / CFS: The "Nederlandse Huisartsengenootschap (NHG)" (The Dutch College of General Practitioners ) has removed the 2013 multidisciplinary...

Muscle testing, again, good for iHerb. But unproven quackery IMHO. Sorry no tips here. I tried countless supplements. Nothing did anything for me. Except: Extreme resting when in crash. Supplement hunting can drive you insane. Hope you feel better soon @Squeezy !

exactly the same here

CT38 Trial: Postponed From: http://birdbeeme.com/cortene-trial-postponed/ 21-09-2018

I don't think these broadcasts can be viewed from outside the Netherlands? And it's all in dutch obviously. I watched it yesterday. It's pretty bad journalism. As always Teun van de Keuken is asking all the wrong questions to the wrong people. He's been doing that a lot in other episodes of The...