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I disagree. I do not think it was adequately challenged. I would never ever recommend this documentary to anyone I know. It is way too vague in challenging CBG/GET. It has at best a few weak attempts.

Bleijenberg: People with this illness have had it for a long time. More than 6 months according to the definition. They are so tangled up in their illness that they cannot get out of it. It often started with a physical cause. Interviewer: But that biological cause is no longer present...

Unfortunately the TV-documentary did not deliver after the promising radio interview. Psychobabbler Gijs Bleijenberg gets too much of a podium: "...yes with CBT people will be able to achieve their goals again..." :nailbiting: After this they show a former CFS patient telling how positive...

After the promising radio interview yesterday, with one of the documentary makers and the father of an ME patient (https://www.nporadio1.nl/radio-focus/onderwerpen/445612-onverklaarbaar-oververmoeid) Dutch transcript from radio interview on https://corsius.wordpress.com/ English transcript...

Duplicate thread merged https://www.gameplanet.co.nz/news/g5a7cc864005d0/Robin-a-free-Kiwi-made-game-about-chronic-fatigue-syndrome-is-out-today/ A Kiwi game about chronic fatigue syndrome is available now on Steamfor the princely sum of zero dollars and zero cents. Robin is described by...

That I don't know. The initiative comes from Millions Missing Holland.

In the Netherlands I know of only 1 ME / POTS / Fybro specialist. His name is Professor Dr. Frans Visser. His clinic is called Stichting Cardiozorg. He is a professor in cardiology and has specialised in ME and POTS. He was the first to diagnose me correctly with ME and POTS. Google translated...

I don't mind this. Suramin trial will not even start within a year because Bayer is not interested. https://www.healthrising.org/blog/2018/02/08/cortene-way-new-drug-trialed-chronic-fatigue-syndrome-mecfs-soon-pt/

Done

Not sure. My GP called it very mild reactive thrombocytosis and said it was pretty common tot have that slight elevation. No need for further investigation he said. https://www.mayoclinic.org/diseases-conditions/thrombocytosis/symptoms-causes/syc-20378315

Not familiar with Hemex / ISAC but was that marker increased Thrombocytes? I started having that in the years leading up to illness. Doc did not think much of it. It wil be interesting what they will find out about the sticky blood issues that are mentioned often in ME lately.

Your english is really good Albgirl. 100% understandable what you are saying here. If you suspect you are suffering from ME besides Radiculopathy I hope someone here or your GP (house doctor) can point you in the direction of an ME specialist in Germany. I've read the waiting list for Charite in...

It's not really a hallmark symptom of ME; have you seen a specialist yet? (question also based upon your introduction post) I mean forums are great, but you deserve to get properly diagnosed by a specialist and not by forum members...

Thank you for your input @Hip ! Will try the breathing test. I have read the Ramsey's disease ebook a few weeks ago. Very interesting. I have been injecting high doses of hydroxy b12 over the last year. Twice a week. That did not make a difference in spo2 readings. Currently trying evening...

But you don't want to be walking with a weird hospital-looking-thing on your index finger all day, that is why I also went on a search for an accurate wrist monitor. And than there is chest straps, accurate but uncomfortable and not suitable for all day monitoring...

You're welcome. Just see if you can compare it to another device sometimes (if available) when you get weird readings or spikes. The SP02 meters are not expensive. (around 35 euros)

I did, many times. I cannot see any correlation with activity or breathing. I have been using device also before I became very inactive. Even then it gave me low readings often.

If you press and hold down button on the right it will show your heart rate continuously.For other questions I would have to refer you to the manual. I owned an Alpha 2 but sold it. I found it to be very inaccurate. Tested it for a couple of weeks and compared with Polar H7 chest strap...

I use a pulse oximeter because it is more accurate in monitoring my heartrate than smartwatches or fitbits I’ve tried. I noticed that my oxygen saturation fluctuates a lot during the day, everyday. It goes from 90-99 spo2. Especially on waking I have lower O2 values. (91-92) It’s not the...

As I understand it many people with ME also have a confirmed POTS diagnosis. When I got very sick in 01-2016 the first specialist I saw was a professor in cardiology because I had measured POTS myself. He is a POTS specialist and one of the few ME specialists in the Netherlands. My own...