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Maybe they were dealing with the unofficial cases of CFS.

@dannybex - yes, we have to start somewhere with something.

Yes, but I don't know how I'd get myself to Bethesda, Maryland.

I think it would be difficult to get comparative rates of illness because rates of diagnosis vary so.

Well of course it could be, but that would be wrong because it is a sodium compound. :rolleyes:

Wow! It seems like we were just celebrating our 200th member. Everybody needs a random Luther. :D

If the silenced, corrupt gene is still not producing the huntingtin protein which is vital for brain development, isn't the person still going to have problems?

I'm having difficulty getting my head around the fact that OMF is going to get a non-trivial amount of research money. That's just not the sort of thing that usually happens to us. Pretty cool when someone tries to give you more money than you are set up to receive! :emoji_wine_glass: :angel...

What he said. When the battery hits 0%, it isn't dead either. It can be recharged. I bought one of those cars once. I had all sorts of problems! :arghh:

I know I could figure it out, but would you tell what your dose is and how often you inject it? I am going to need some ammo when I talk to my doctor's nurse. Even the pharmacy tech at the pharmacy thought this was reasonable. It was in three bottle of 1 mg each that cost over $10 each. :banghead:

Opps, it looks like I am pretty out-of-date. :oops:

Bump for those on Reddit

Not too long ago, Mayo Clinic found that (almost?) all of their chronic sinusitis patients had a fungal infection.

I do not have pernicious anemia. I don't know that I test low for B12. I take it because it improves energy level and cognitive function. I am currently applying it transdermally. I feel better if I do two doses/day, but it is so time consuming and messy that I rarely have time for a second...

Unfortunately, I have this problem with my doctor of several years. She claims to take CFS seriously and has been willing to prescribe some appropriate things. Then every so often she says or does something really off-the-wall. Most recently, she prescribed injectable B12 at 1 mg/month...

I think copying the article here might be a copyright violation.

If you have not seen your ophthalmologist recently, I think it would be a good idea to do so and eliminate (or find) any non-ME causes of the blurry vision.

This is why we need interdisciplinary research teams.

But if one is sufficiently debilitated, employment is not a possibility. Without employment, clothing, food, shelter, safety, dignity, and autonomy are all put at risk. When you become isolated, as is common with severe disability, you are not needed or appreciated by anyone.

And then you HAD to share it. :nailbiting: :p