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  1. Rain

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    @Trish thank you. That is the only thing I could find as well... Hopefully everything will be available on YouTube afterwards, so that we are not depentent on watching it live.
  2. Rain

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    I’m not able to find a Scedule... Does anyone know what time the different speakers will be on?
  3. Rain

    Merryn Crofts - media and inquest

    Severe ME here. Sciatica describes one of my most presistent neurological symptoms. A numb tingling type of pain from the left side of the lower back/buttock, down the left leg, that ends up in the heel. My left side is in general weaker. An EMG/Neurography showed some abnormalities, but not...
  4. Rain

    Prof. Mella - Autoimmunity and metabolism in ME/CFS (lecture)

    May I ask: what turned out to be helpful for you?
  5. Rain

    .Norway study of Rituximab

    I do actually think they tried out dialysis in a few patients during the early stages of Rituximab trials. Seems like they quickly stepped away from it as it’s years ago and it has not been mentioned since.
  6. Rain

    Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

    Seizures: to my experience, they do get better with antibiotics and other medications with immune modulating effect, but that kind of treatment is not easily available... My current doc choose to treat it as a severe kind of Migraine, but nothing with great effect so far. Daily twitching and...
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