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Thanks @Trish, I am always curious about this, and it seem to either be "journal" and "listen to recovery stories" or here's a $400 a month plan I have PTSD and have actually found adapted safety messages really helpful. Still got PTSD and ME, but not having quite so many panic attacks and...

I felt that, viscerally, as I am an always have been just the same. :hug: It is impossible to convey to anybody that doesn't get it exactly what the impact of that loss is.

Oh, same! Late diagnosed ADHD-er here, and still waiting for an autism assessment (coming up to the third anniversary of being put on the list), as my symptoms were flagged during the pre screening process for ADHD. The relief is immense; I'm not a failure of a human being; I have executive...

Yes. Absolutely. Exactly.

Wtaf?! She wasn't sectioned the first time?

I think it is considered a very derogatory and perjorative way to identify people with any combination of neurodivergence, LGBTQ, disabled with ME/LC/POTs/Fibromyalgia etc and concerned with social justice and things like climate change, as this seems to have disproportionately high numbers of...

Ah. I see. I think there is still significant value in making sure that as many disabled people as possible are registered to vote and signed up for a postal or proxy vote, as a starting point. Yes. This feels like the pressure point that needs focus as the next step; making sure people have...

Forum rules prevent me from using the language I would wish to, to respond to this idea :muted:

I have just looked up the relevant links for anyone that would like to copy this post and share it: Are you registered to vote? link here: https://www.gov.uk/register-to-vote Are you registered for a postal vote? link here: https://www.gov.uk/apply-postal-vote if you cannot go to the polling...

MELN UK Annual Meeting. 4th September 2026, 12:00 till 13:00 On zoom, please use the link below to register: https://us06web.zoom.us/meeting/register/C7tVMU2ERgmwKB4w1cXrQg Maybe you're a long standing associate of MELN UK and want to come along to keep up with what MELN UK are doing. Or...

This is a really excellent point. I will raise it with MELN and get people to share with their groups.

And many of them need medical treatment to detox first, especially if severely affected.

While seeming completely baffled that this is completely unequivocal. Clear exceptionalism.

Ah, yes. A very good point. Thank you for pointing out the flaw in my workings :thumbup: Yikes. At the beginning of the pandemic I saw a study that suggested SARS and Ebola, among other diseases, have and average tail of post acute sequelae of about 12%, so this is a pretty good guess. I...

So it's actually 57 people who have recovered (I am rounding up, to be generous) Out of 404k patients in the UK. That's approximately 0.014109% of 404,000.

Schrödinger strikes again. Both the establishment and the rebellion Seems to be becoming quite common in a certain demographic currently

This is so incredibly damaging; especially for people who are already very vulnerable. How many people have internalised that toxic self blame? Offering people tools to support themselves would be genuinely helpful, but this kind of framing is the opposite of that. That you for summarising it...

That is a very succinct summary and identifies a lot of points of failure where things are going wrong. I am curious as to what can be done to change each one, as that would significantly change people's experiences, if not always the trajectories of the illness. As noted elsewhere, the...

does anyone have access to a copy of this paper? thanks!

I Googled and it is mentioned on MEpedia, health Rising, and at least 4 threads on Reddit - I'm sure I read it on MEA recently. I was quite surprised how many places it was mentioned as a common symptom. Also found this: Low Vasopressin in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...