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Wot Sid said

Just tried The uk wording is based on the NHS website …

SSRIs tricyclics gabapentin/pregabalin. Throw it at the wall see if it sticks medicine n my opinion.

After earlier concerns about the coroner it is reassuring to hear Sarah Boothby sounding more positive about the process. And good that a date has finally been set.

Oh no hope you can find someone sensible. Meanwhile if you have to see her again maybe the physiosforME one page helpsheet would register with her.

And they also shared on Facebook

They should have programmes that do long term follow up

Wow @Wonko im so glad you got access to online food shopping.

:emoji_fire:

Succinct and hopefully will influence many health professionals. an excellent example of how to get key points over in a communication product without needing to go into all the background.

Improved but clearly not recovered

Articles from the likes of Reuter and AP are syndicated so do often proliferate across the press & media

Well AFME and MEA did a decent job on the dragons den debacle so even if NICE don’t do much hopefully their efforts will produce some coverage

The nhs web update is in the draft implementation plan published in the autumn by DHSC. Update by end of March 2024 I think they said. At the time the draft plan came out many of us pointed out that 6 months to sort the small amount of web content was utterly ridiculous and could be sorted in a...

Agreed @TiredSam the situation of many in the ME community is very bad and that’s what we all focus on and we all do our best to highlight very severe in discussions advocacy responses etc Sadly the situation of others may be due to different harms but is also terrible.

:D

I think under the old guidelines the more aware and able to advocate for themselves PWME would have chosen not to mention care plans at all anticipating that if GPs were doing things according to the guidelines GET/CBT would be included. And certainly I don’t remember coming away from the CFS...

Group video conferences cause PEM for me.

Oh ok now they’re coming out - couldn’t stand the charities getting the sensible message out. What planet is Miller on :banghead:

It’s not a great situation but seems like there’s a silver lining of reasonably good publicity People who might have had the initial coverage sent or mentioned to them now have some ok articles and tv coverage to respond with even if they weren’t confident to push back in their own words at the...