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  1. M

    ME is not a functional disorder: ME Association 13,000+ petition sent to NICE

    This extract from above shows how little they understand re moderate or severe ME. "Difficulties with memory and concentration are a core diagnostic criterion for chronic fatigue syndrome and myalgic encephalopathy (CFS/ME) and may be present in people with fibromyalgia and functional...
  2. M

    Advice RE claiming UK benefits, paying NI contributions

    Hi does anyone have ideas for info about the nature of moderate ME that would be worth taking to a Jobcentre appt. I know this is a bit random. The person in question had an ESA where the assessor basically said she wasn't making enough effort and it looks like they are trying to put her in the...
  3. M

    Cognitive factors are associated with disability & pain, but not fatigue among physiotherapy attendees with persistent pain & fatigue, 2019, Antcliff

    This is just one example of a self-efficacy questionnaire: Schwarzer - https://cyfar.org/sites/default/files/PsychometricsFiles/General Self-Efficacy Scale (Adolescents, Adults) Schwarzer.pdf p3 Items: 1. I can always manage to solve difficult problems if I try hard enough. 2. If someone...
  4. M

    SMILE trial data to be released

    I think you deserve the advanced status for your amusing and insightful comments. Horizontal Superman (advanced)
  5. M

    A Critical Review of the Biopsychosocial Model, 1998, McLaren

    So true, @Woolie, @strategist and @Trish. The first time that I heard re the BPS idea, I felt exactly the same, ie all illnesses are influenced by biological, psychological and social factors to varying degrees. Last time I was having steroid injections in my sacro-iliac joints by the pain...
  6. M

    ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS

    Good results to take to UCL appointment in May for teen with ME, who is being threatened with discharge if she refuses to undertake their GET/CBT regime.
  7. M

    News from Scandinavia

    is there any update on how Maria Gjerpe is doing now?
  8. M

    MUS services in UK and other MUS related issues

    https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf p5 "Think about MUS if: 1. Your patient has undergone an unusual level of investigations and/or been to a significant number of hospital specialists relative to their diagnosis (remember MUS can also occur in...
  9. M

    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    Seems to have picked up the BPS habit of "have you read the paper/did you read the whole thing..."
  10. M

    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    Have just replied to the above tweet ...if the article is about chronic fatigue, then why is the headline "Treatment for Chronic Fatigue Syndrome...?"
  11. M

    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    Wesseley's remarks above, from: "confusion between an illness belief, usually self-diagnosed, and a reproducible, reliable, exclusive case definition [12]." I wonder which case definition/diagnostic criteria/name of illness this refers to? I cannot think of one that the BPS crowd have thought...
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