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  1. Colin

    Investigating reduced tolerance to alcohol in ME?

    When the GI diet came in, in the late 1990s, I reduced my sugar intake greatly and it was one of the few things that have made a difference; albeit not a great one. So while I find that connection quite plausible, I'd like to see more evidence for it, too. Obviously, many people have...
  2. Colin

    Investigating reduced tolerance to alcohol in ME?

    I could eat yeast by the glassful, with milk, and did for awhile as one of many health experiments, and I never had any sort of allergic reaction to it or to anything else that one might find in the various sorts of flavoured ethanol that are made. But straight vodka could, and did, have the...
  3. Colin

    Investigating reduced tolerance to alcohol in ME?

    A much lowered tolerance is something that I can report certainly was my experience. And while I've been aware that it is a known thing, one aspect of my experience of it I've never seen reported. When I did still drink, socially only, when I was younger, it was the one thing that would make me...
  4. Colin

    What is an engaging, informative, short, accurate description for ME/CFS?

    Haven't found a general-purpose, pithy way to describe it and I don't have much opportunity to try, anyway. But some audience-specific metaphors can work (even if one defines success as the inquirer just dropping it, which is pretty much the best I've ever acheived). For instance to a drinker...
  5. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A short (1:46), BBC report on two LC patients; mainly on Dr Natalie MacDermott, who was one of the authors of the critique of the NICE guideline, in Lancet. She was also one of those interviewed in the ABC's Science Friction radio program. I saw this report given a run on both the ABC News...
  6. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Five-minute report on NPR's flagship program "All Things Considered" on work being done at John Hopkins University on "lingering symptoms" of COVID-19: Johns Hopkins Medicine Is Trying To Help COVID-19 Patients With Long-Term Symptoms <<Fatigue is a common symptom; cognitive complaint, like...
  7. Colin

    Why is ME/CFS getting so little research funding?

    My impression for many years, from a position of ignorance out here in the antipodes, was that ME/CFS research was ignored because the real cause was already known by Them What Control Things and that it was too useful/expensive for them to let it go. It would explain a lot. And I imagined many...
  8. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Heard this today around noon on ABC News Radio, only a few minutes long. There was some discussion of LC as a post-viral illness - she objected to the term on the basis that she had developed symptoms, such as loss of smell, only months into it - but no mention of ME/CFS, which made me wonder if...
  9. Colin

    Regional microglial activation in the substantia nigra is linked with fatigue in MS, 2020, Singhal et al.

    At the well-known firm of Right Parahippocampal Gyrus, Right Precuneus, and Juxtacortical White Matter R Us, obviously.
  10. Colin

    Regional microglial activation in the substantia nigra is linked with fatigue in MS, 2020, Singhal et al.

    The suggestion here is that the fatigue in MS and in ME/CFS are both due to inflammation in the basal ganglia (and, to a lesser extent, connected regions of the brain) and low dopamine levels (though which comes first isn't clear). However, as I understand it, those with MS do not get PEM so...
  11. Colin

    New Name For "Brain Fog"?

    Yeah, short and pithy would be good, as it is so much more than those things, which are just the results, in my experience. That's all quite interesting, there being an attempt to explain a mechanism of mental tiredness; as well as to measure those aspects of it on that Mental Fatigue Scale...
  12. Colin

    New Name For "Brain Fog"?

    My thanks to rvallee for pointing out that "brain fog" has no medical name and therefore no proper, medical recognition. I seem to have internalized the fact so deeply that the obvious had escaped me. The "fog" has been, for me, as bad as the lead overalls. If I could just stay in but still...
  13. Colin

    Australia: News from Emerge Australia

    Wow. Casey Stoner. That is a celebrity name. I hope he's doing okay. As an old, bike rider who had to give it away, I feel for him. I'm also very impressed, having posted only yesterday on how it is almost the norm in media reports for women to be presented as the typical sufferer. I've heard...
  14. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is there an element of bait-and-switch here? While I accept that there is a greater percentage of women and girls who do suffer from ME/CFS-like illnesses, and that that is plausibly explained by there being an auto-immune component to them, the specific mechanism is, obviously, not clear and...
  15. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I don't believe so. The ABC did once have the money to do transcripts on many programs but it's pretty uncommon these days. Glad you liked it. But I should acknowledge the obvious: that she had to talk to U.K. doctors because our own medicos have, luckily, not been so badly affected. So we can...
  16. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    First I'd like to declare something of a personal interest. Because of my situation, I've listened to way too much ABC radio and watched way too much ABC teevee over the years than is healthy for the sanity. But I would like to think I am exhibiting sound judgement in expressing my admiration...
  17. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It might not be all bad. Curiously, she warns against the lumping of patients into one of the four catagories because they might be in several yet takes that to be an argument for keeping the diagnosis "broad", which is to lump all four togethor. But they then will "as research progresses, be...
  18. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Discussion on the BBC World Service "Science In Action" radio program here: Covid-19 mortality (starts 12:16m) Logically, therefore, though there was a mention of post-viral-fatigue syndrome, there was no mention of those dangerous pigeon-holes known as ME or CFS. Imerson's background is in...
  19. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Not quite. There are two mentions but snuck in so even those sensitized to it might miss them. How much more those ignorant of the subject? When they start to cover themselves by bunging in such oblique references, while not explaining the substance of it all, so they can later say that they...
  20. Colin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's taken us years and years to get our own, nice, cosy, too-hard basket so I agree that they shouldn't expect to be let in ours. Work on it for a decade or two and then you might get your own, I say.
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