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"Many experts contend that long COVID is best defined as a chronic-fatigue-syndrome-like condition that develops after COVID illness, similar to other post-viral syndromes. Other post-COVID complications, like organ damage and post intensive care syndrome, should not be defined as long COVID...

Proal is the Chief Scientific Officer for LCRI.

This vaccine situation has been a disaster all the way around. So many adverse reactions with little help to patients. So much trust dissipated with medical system in general.

FWIW, I have emailed Dr. Whittemore relating to this press appearance and know many in the community have done the same. I hope more will follow suit. Below is a quick template shared by a pwME to help copy/paste/send. Her e-mail is whittemorevr@mail.nih.gov...

"IN HIS OWN WORDS: advocating for ME/CFS. Fulton resident Billy Hanlon is sharing his story to help address unmet needs for chronic fatigue syndrome and Long COVID" https://www.swconnector.com/stories/in-his-own-words-advocating-for-chronic-fatigue,6210 "There are several noticeable gaps for...

Moved post City of Minneapolis, May 12, 2022 City Council Just sharing that Minneapolis, Minnesota highlighted ME & Long COVID on World ME Day on May 12th with a City Resolution with a hearing. The timeframe is from the start - until about 9 minutes.

Thank you @Kalliope. Do you happen to have any time-stamps of ME/CFS before I click into the 30 minute segment? No worries if not.

Just to clarify, "unlike CFS" is not within the quote from Dr. Levine; that's the way the journalist has chosen to say it.

I don't have a Nat Geo subscription, but curious if anything of note in this. https://www.nationalgeographic.com/science/article/two-years-into-the-pandemic-covid-19-still-surprises-experts

Wall Street Journal: "The Invisible Kingdom’ Review: Malady Unknown" "Autoimmune diseases, chronic fatigue syndrome, fibromyalgia, Lyme disease and now long-Covid: These are some of the disorders that don’t have easily identifiable markers. Their symptoms come and go, varying between patients...

VTDigger: "Vermonters with long Covid still face barriers to care" "In the way it limits patients’ energy levels, long Covid is similar to myalgic encephalomyelitis, the condition commonly known as chronic fatigue syndrome. Another frequently misunderstood illness that many doctors believe can...

(please withhold judgment, only just sharing excerpts) Posted on 2/19/22, @mtosterholm [Dr. Michael Osterholm] joined Joe Rogan's podcast to discuss several aspects of COVID-19. One topic discussed was Long COVID & relation to ME/CFS. I will relay some of these quotes. (Rogan's podcast reaches...

UCHealth Today: "People get help for a variety of confusing symptoms of long COVID" "This is an important area of study, with a focus on the possibility that long COVID symptoms again overlap with another condition, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Jolley said. Many...

Medical News Today: "What is 'long COVID' and how does it affect those who experience it?" "Extreme fatigue appears to be the common denominator between long haulers, which has led some specialists to compare or link the long COVID phenomenon with post-viral syndrome. The symptoms of this...

Moved from the long covid thread New Haven Register: Long COVID fatigue may not be a heart or lung problem, Yale doctors say "When cardiopulmonary tests don’t reveal a problem with the heart or lungs, “it’s not that they’re making things up,” said Dr. Inderjit Singh, a pulmonologist at Yale...

NorthJersey: "COVID could launch an epidemic of chronic fatigue syndrome, doctors warn" Some quotes: "Even as the latest COVID surge recedes, doctors and patient advocates warn that the virus could leave a new epidemic in its wake: millions more cases of the rare, mysterious condition known as...

Ah gotcha, my fault. For some reason I thought it was a little different...I think this time they edited in ME then, because at least as of Monday the NYT article only referred to ME/CFS as CFS or chronic fatigue. So there's that.

OICanadian: "The problems to do physical exercise that those who have long Covid are suffering" "The research I carried out shows that the difficulty of doing physical exercise is precisely one of the most common symptoms of Covid in the long term,” says Lambert. Some just don’t have the...